Hello all ... After a 6 month wait I was awarded my pip for my lupus and fibromaligia. I qualified for the enhanced rate of care at home and higher rate mobility. They even backdated my payments! So all of you fellow sufferers who are waiting for a decision do not loose hope. You can read some very negative responces from the internet but the system does work. One thing I will share is when your filling your forms set your brain to the worst day you have. The days when you can not get out of bed and are too tired to eat or take a shower. Tell them every tiny detail it might be silly things but this will help with the grading of points. Tell them all the adaptations that you need to get through a day. I am happy to talk or text anyone who needs guidance but overall a very good start for 2019 ! 😎
GOT MY PIP 🤗: Hello all ... After a 6 month wait... - LUPUS UK
I had my face to face interview on 31 October 2018. So I guess all the devils where getting ready to party! However they start the review from the moment they see you getting out of your car and walk into the room. I did have a lovely lady who after seeing me struggle actually gave me he arm for support. It was stressful but the not knowing is the worst. I wish you well lots off love x
Fantastic news! You must be so elated!
I have my court date for a reconsideration at the end of January I’ve been waiting 57 weeks for this... I have 6 different autoimmune Diseases, lupus then the others came to light very quickly after diagnosis, I’ve worked all my life until I had a realization that I couldn’t do my job anymore due to my health and finish my career and find my new normal!! I have never asked for anything before like this.. scares me a lot!
It’s my 1st time writing in this group, I’m not normally sure a sharer but I follow the group closely and can related to a lot the the story’s... your post has given me hope.
Thank you xxx
Like you I always worked and was diagnosed with Lupus and fibromaligia in 2003. I am a qualified pharmacy dispencer so instead of giving out the pills I now take them. I can't see anyone on here wanting the illnesses we suffer. Like most I am sure we would rather work. Lupus has taken my life. I depend on my children and I am in pain constantly... won't even start on the tiredness 🙄 ...lack of vitamins ...anemia, thyroid the list goes on! I actually asked the women at my interview if she wanted to change positions with me. She couldn't say no quick enough! I can't see anyone making the symptoms up or arguing with the diagnosis from the consultants. We have good days and bad. One point to remember when you have your assessment ask to see what is being written. This will help to clarify what your exactly trying to say don't be threatened as it is your right. I did my research before my interview and it paid off. Stay focused and stand your ground ....you have got this girl 🤗
Hi there just a question as your qualify pharmacist you know when you take metformin and i heard that it ashley increases your appetite so what can you do to control the because i'm putting so much weight on and what are the advantage of this medication curry not do something else.
My whole body is in pain from neck from joints now today I have a horrible headache can't seem to concentrate or I'm so feeling confused.
Has anyone ever experienced having pain in the eyes like an odd inside the eye. What cause it