Lupus Blister Update : ... - LUPUS UK

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Lupus Blister Update

Tiras profile image
Tiras
β€’5 Replies

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I had to go to the dermatologist today about this Lupus Blister. They put a needle beside the blister and went under it without bursting it, injected medication to try to make it dry up faster. Every since it started on Saturday, it has almost doubled in size each day. The needle going in didn't really hurt much (I don't have much feeling in my feet due to lupus effecting nerves) but, burned like fire 10 to 15 minutes later. The burning took about an hour to stop but after the first 5 minutes it burned less until it stopped.

I guess sometimes we who have lupus, wonder if it is worth all we have to go through. The pain, even the pain to make it better. We all know it will never stop as long as we are alive.

I still have my motto

I WILL NOT LET LUPUS CONTROL MY LIFE!

LIVE LIFE TO IT'S FULLEST!

πŸ‘£TirasπŸ‘£

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"The Barefoot Gardener"

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Tiras profile image
Tiras
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creaky profile image
creaky

Hope it improves soon Tiras, never let lupus define you!!

☺ πŸ€ πŸ€

EOLHPC profile image
EOLHPC

I agree with creakyπŸ‘πŸ‘πŸ‘πŸ‘

Am glad of this update BFG, many thanks πŸ‘πŸ‘πŸ‘πŸ‘

Am v interested in your feet sensations: mine started being numb in my 20s & have gradually got number as the decades have passed...my hands are numb too, but less so than my feet...I always think: if I walked on my hands, they'd probably be in as bad shape as my feet πŸ˜†....

BUT: like you, I aim to be v conscientious about caring for & managing my sad feet, and my podiatry care helpers all tell me this is paying off.

Anyway, I'm v aware that I could miss/not notice damage to my feet due to their lack of sensation...eg the last time I had a steroid injection to the metatarsal bursitis the injection didn't hurt much & the response was good (the bursitis was well damped down), but a reaction developed involving deep tissue bleeding & severe soft tissue soreness right where the injection went in...this reaction became worse over the weeks following the injection...but then gradually faded away as the months/years passed..eg at first I couldn't wear a shoe on that foot...but now I can ok...which is a good thing in the cold muddy Brit countryside where we live

So, I feel as if I'm on a learning curve...understanding what sort of feet pain my version of lupus related vascular peripheral neuropathy actually permits me to FEEL...which makes your observations re this bad blister experience you're having extra interesting

You're so right:

"Sometimes we who have lupus, wonder if it is worth all we have to go through. The pain, even the pain to make it better. We all know it will never stop as long as we are alive.

I still have my motto

I WILL NOT LET LUPUS CONTROL MY LIFE!

LIVE LIFE TO IT'S FULLEST!"

πŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ€πŸ€πŸ€πŸ€ coco

tarnold profile image
tarnold

I feel your pain. I, too, have lupus. It's a disease that is so hard to explain. I don't think my husband believes me that I have lupus. I know one thing, I wish I didn't have lupus. Keep strong.

avionne profile image
avionne

Oh hun that looks and sounds painful.. hope it gets sorted x

Tiras profile image
Tirasβ€’ in reply toavionne

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Avionne;

Actually it does not hurt, I went to the dermatologist and they drained it. It looks much better now. It all started because I wore flip flop sandals and it rub a small spot and quadruple in size. This is why I have been barefoot for the last 2 years. I will not try any type shoe on now after this. I'll just go barefoot. Fortunately I live in the southeastern part of the U.S. in the state of Alabama, we have mild winters so it has not been an issue in the winter yet. It is hot here about 8 1/2 months out of the year. Then high 50's to low 60's ( degrees Fahrenheit), in the winter for day time highs. So not much of an issue for me to go barefoot year round.

Thanks for your concern!

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