Red feet

[Macsimum_de]

Does anyone have feet that look like this?

[farmerfeste]

Hi what are the palms off your hands like

[Macsimum_de in reply to farmerfeste]

Bright red also. The longer I’m up on my feet the more red they get.

[Bronagh2015]

Hi I have raynauds and just lately my feet and hands which have always been freezing cold suddenly become red like yours and burning hot. It's really painful and disrupts my sleep. I'm seeing my Consultant on Monday for Flolan infusions so hoping they will help. 😊 Bronagh

[Makimon]

Hiya, yes I’ve had very red soles of my feet like that. I’m in constant pain with my feet and it’s ruining my life! Do yours hurt too? X

[Macsimum_de in reply to Makimon]

They throb. I can’t even wear socks at night because my feet swell. I was just diagnosed with lupus but wonder if there is something else going on? They didn’t think it was Raynauds.

[Makimon in reply to Macsimum_de]

I’ve been diagnosed with Raynauds and have suspected lupus. I don’t associate the red soles with Raynauds as it seems to connected more with the pain and swelling in my feet also. I’ve had severe pain in my feet for years that also really throb at night. I’m beginning to think it could connected to Lupus. When I’m put on steroids my feet feel fantastic but when I stop them the pain comes straight back! I’ve started Hydroxychloroquine but I’m only on week 3-4 but I’m really hoping it helps me!

[Macsimum_de in reply to Makimon]

They put me on 60mg of Prednisone and I felt fantastic also. They took me off that and just started me on hydroxychloroquine but I’ve only been on it for a week now. I’m hoping it helps! Today I hurt so bad I could cry.

[Makimon in reply to Macsimum_de]

Oh my word! I really thought I was on my own with this problem! What happens to you sounds very similar to me too. I’m really hoping that Hydroxychloroquine works for both of us. I thought it may be working last week but I’m feeling rubbish again but it’s still early days with it. Are you on 400mg a day?

[Macsimum_de in reply to Makimon]

You are not alone that’s for sure! They have me on 200mg to start. They said they may have to up it but wanted to start with this. They also think I have fibromyalgia to go along with the lupus.

[Makimon in reply to Macsimum_de]

I was on 200mg to start with and have now gone up to 400mg. Funnily enough I was diagnosed with Fibromyalgia in 2013! It’s been around a year and a half when my symptoms changed and things started to look more autoimmune. It’s hard to separate what could be lupus and what could be Fibro sometimes!

[Treetop33]

Yes I do sometimes. It doesn't bother me that much. I have wondered if I have a touch of Raynauds.

[farmerfeste]

See your gp

[Macsimum_de in reply to farmerfeste]

I was just diagnosed with Lupus and they said it wasn’t Raynauds so wonder if there is something else going on?

[Hidden]

Erythromelalgia? google.co.uk/search?q=eryth...

[Macsimum_de in reply to Hidden]

Thank you!

[Hidden in reply to Macsimum_de]

No problem. It’s actually quite common with rheumatic diseases.

[SweetoneOdie]

Yes exactly like mine and they hurt periodically ..

[Krawlins]

Yes I do have very red soles of feet, so did my mum, we were both diabetic type 2 and I get vibrations in my feet, as a young mum when watching my boys in football matches my feet would go numb. I have to wear trainers or thick soled shoes, they are full of callouses and corns and are very painful at times, no one has ever told me what it is but the diabetic nurse said my feet were bad. I visit a chiropodist four times a year, would like to go more often but it costs an arm and a foot! I tried on several occasions to see a rheumatologist and find out if I had something underlying since I suffer from pain in all joints and muscles, especially around hip/back and they didn't find anything so I am no longer under their care. My mum and I have had so much skin removed on our feet that the soles went slippy and my poor mum just used to slip on the floor and fall out of bed, this is beginning to happen with me now. Let us know how you get on if you consult the medical profession.

[maybehope]

Yes my feet are exactly the same and I have Lupus and Fibromyalgia. Been taking steroids and hydroxychloroquine for two years. Not made any difference!

[misty14]

Hi macismum

My feet too can burn similarly to yours. I use the boots cool pads as they stick the best. I get burning on the front of feet also under the toes so use them across there. Is it just the soles?. I have Raynauds too but have always thought it was inflammation as it varies. I hope the Hydroxy helps as it can be difficult to sleep can't it with burning feet!. X

[Hidden]

Look into Erythomelalgia. It accompanies a lot of autoimmune diseases.

[Mspope01]

Yes but not able to stand on mine like that have been on Prednisone for months no change it's very painful I have lupus

[MrsMarigold]

Hi Macsimum. I have lupus and was recently diagnosed with erythromyalgia which is quite painful. My entire feet become beet red in heat and humidity. Or Exercise if not very gentle. Also my hands,

Arms, chest can be as reactive. If prednisone is not helping perhaps try something else? I take 400 mg hydroxy, 4 mg prednisone, and neurologist added aspirin to this mix. The aspirin is what works best for the erythromyalgia which sounds very much like what you are experiencing. Before Covid I had regular reflexology massage of my feet, calves, arms and hands. I have “ connective tissue”

Lumps and lymph node enlargement due to inflammation. It helped tremendously. I’m now going to start again. I hope this helps.