Weird white feet feet! (Sorry about the picture) - LUPUS UK

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Weird white feet feet! (Sorry about the picture)

kateclowe profile image
7 Replies

Hi guys!

Hope everyone is well during this time. I just wondered if anyone knew anything about what’s going on here? I know obviously what it looks like; but don’t want to jump to conclusions as I know no one that has similar symptoms so cannot ask them.

Alongside the colour, I get to tingling and numbness and a weird sort of pain I can’t explain when I walk when they’re freezing cold.

Thanks to anyone if you can help.

Xx

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kateclowe profile image
kateclowe
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7 Replies
Salzer profile image
Salzer

Hi Kate. I have raynauds and it often affects my feet. Looks very similar to that. Also sore to walk on and a strange feeling that the bottom of my foot has disappeared. Have you been diagnosed with raynauds? S

kateclowe profile image
kateclowe in reply toSalzer

I did think it resembled this somewhat! Yes - it’s an odd feeling I cannot explain ha! I haven’t been diagnosed with it - I’m still undergoing a lot of tests for a solid diagnosis but it’s been put on hold for the time being - understandably. So, I’m not quite sure yet.

PMRpro profile image
PMRpro

It is typical of Raynaud's syndrome manifestations - the blood vessels go into spasm so the blood flow to the region is reduced. That is normally episodic - is yours (semi)permanent?

medicalnewstoday.com/articl...

fixmyfeet.co.za/raynauds-di...

is a bottom of the feet image.

kateclowe profile image
kateclowe in reply toPMRpro

Yes, so, I tend to have it throughout the day for about 20-30 minutes then they cool off and it can happen again.

The other day, my feet were unbearably itchy as well.

Just wondered if anyone had advice because I can’t get to the doctors right now.

Thank you for the links, will take a look now!

PMRpro profile image
PMRpro in reply tokateclowe

Keep your feet warm - and the rest of you. Wearing a body warmer will improve blood flow to the extremities and help reduce attacks if it is cold-induced reaction. Mine was - walk down the chiller aisle and the hands were gone! My husband used to diagnose Raynauds and at least half the patients weren't - but teenagers who were wearing short skirts and ballet flats in January. Normal in Newcastle area that. Medical advice: dress properly!

One lady moved to Spain, another to the south of England. It is possible to get battery operated boots and gloves if you are really bad and a bit cheaper than moving house.

sruk.co.uk/raynauds/managin...

my.clevelandclinic.org/heal...

DJK99 profile image
DJK99

Hey Kate- yep, I agree with the others - looks like Raynauds. I get it in hands and feet and have done since in my youth. It can get nasty and feel like you are walking on bare bones if you get caught outside in cold weather (I remember that before I was prescribed nifedipine by Rheumatology as it was severe apparently - well, I know it was, the whole of all of my fingers were white, going into my palms..). I showed my Rheumy a pic of me feet and he said it could be neuropathy too. As the others say, keep dressed up warm and especially your extremities, and keep the temperature as warm as possible in doors to keep your base temperature good too... also do exercise every day or as much as possible... keep the blood flowing. I wear bed socks and thick socks in the day. Do you get it in your hands? If you do and aren't prescribed meds, I found an article on a Canadian website for womena few years ago as I was about to fly there for Xmas. It recommended whirling your arms round to force the blood down into your fingers. It may look ridiculous but it totally works! Started the cyanosis thang going and all that, and I kept going until blood was back and flowing. It said it's the centrifugal force making it happen. You can always put your feet and hands in warm water too...if you can't get rid of it.. but never hot water as this can bring on chilblains. Hope that helps x

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi kateclowe ,

You might be interested in our article about Raynaud's phenomenon which includes a lot of information and advice for coping with it - lupusuk.org.uk/coping-with-...

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