Flare up

[Lollz]

Hey folks thanks for having me, I was diagnosed with SCLE last August after several wrong diagnosis including being told I had Pustualr Psoriasis and that spending time out in the sun would help! I'm having a bad flare up at the moment but I know exactly why, i'm in the very early stages of pregnancy and i'm terrified that once again i'm going to lose my baby. I've been pregnant twice before & lost both babies round about the 8 week mark. This time i'm on preventative blood thinners & i'm obviously classed as high risk and am getting extra scans. I got my 6 week scan & I saw a tiny little heart 💜 beat. Anyway i'm wondering if there are others out there who have been through the same process & who now have happy healthy children? My partner believes I won't be able to carry a baby to term because of all my health issues & he keeps saying I lost the babies because of all my meds, I keep trying to tell him it was probably because of my Lupus but he just doesn't understand. I'm just looking for a little hope from anyone who is in or has been in my position. Thank you

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I’m sending you hope

[nanleighh]

I have been an OB nurse for well over 20 years and have seen many successful pregnancies in lupus patients. The Meds are not what causes the pregnancy loss, it's the blood clotting disorder that goes along with the disease. The fact that they put you on blood thinners and are monitoring you closely, plus the fact that you have seen a heartbeat makes me very hopeful that your pregnancy will progress. Love and Hugs,. Nan

[Lollz in reply to nanleighh]

Thank you so much I needed to hear that, I am hopeful that this time we'll be successful. I have another scan just after the 8 week mark so i'm just hoping that this time the baby will still be there, once I get past that I'll be happier xxx

[Chanpreet_Walia LUPUS UK]

Hi Lollz,

Congratulations on your pregnancy! Have you informed your GP or rheumatologist about the flare you are experiencing? It is best to speak to them about this so that they can do any additional monitoring they may want and possibly make adjustments to your treatment.

Many lupus patients have successful pregnancies; we published a booklet about lupus and pregnancy which you may find helpful - lupusuk.org.uk/wp-content/u...

Please keep us updated, wishing you all the best

[Lollz in reply to Chanpreet_Walia]

I have appoints with my dermatologist so hopefully they can help with my flare up. I don't have much confidence in my rheumatologist since he saw me once & told my gp he won't need to see me again (both myself & my gp thought this was ridiculous). Thank you for the info though I'll deffo read through it xxx