Just joined this site. I was diagnosed with lupus in 2008 after been ill on and off for years. At the time I was diagnosed was ill for 4 months. My consultant said I had lupus for 5 years previous to being diagnosed.
After steroids for 6 months my condition has been managed with hydroxychloroquine. However last year the impact of lupus reappeared, at a routine lupus check up it was found I had a heart murmur. Further tests showed I had a severe leak of the heart valve (caused by lupus) and I needed heart surgery. I had the surgery last August and it took 3 months to fully recover. I am now recovered and back running 3 times a week