Famous lupies...: Someone just sent me this link... - LUPUS UK

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Famous lupies...

PMRpro profile image
13 Replies

Someone just sent me this link - I thought some of you would like to read it:

thequietus.com/articles/186...

Apparently she's just been on Radio 4 and mentioned lupus...

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PMRpro profile image
PMRpro
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Barnclown profile image
Barnclown

😍OMG: I ADORE Ane Brun...her BEAUTIFUL song The Opening (with Fleshquartet) was used as the theme for the best Swedish Wallander True Detective series (in this video clip we see him facing up to his Alzheimer's with The Opening playing): m.youtube.com/watch?v=UGsss... The Opening has always seemed to me a metaphor for life with lupus (& other chronic illnesses)...but I had no idea she has lupus💡💡💡💡...THANKS SO MUCH: great interview 👏👏👏

🍀😘🍀😘 coco

PS here are the lyrics of The Opening:

When there’s so much darkness closing in

Just swerve around slowly

You’ll find an opening

A light will appear like an animal between the trees

There you’ll find your pocket of peace

Make a perfect circle, it’s all around you

Put your mark on the map anywhere or nowhere

It’s up to you it’s not too late to find an opening

Trace a track until you find the end

There’s a clearing in every forest, at least one for every man

The light will appear like an animal between the trees

There you’ll find your pocket of peace

Make a perfect circle it’s all around you

You know that everything lingers for you to follow through

||: It’s up to you

It’s not too late to find an opening

Do you wanna rediscover or do want it all to be over

Do you want to see the meaning of the circleing?

PMRpro profile image
PMRpro in reply to Barnclown

I have to confess - I had never heard of her. But the interview is lovely.

Barnclown profile image
Barnclown in reply to PMRpro

Yes it really is! I'd never heard of her till I fell in love with The Opening and searched it out online...discovering her in the process...all her lyrics seem wonderful to me (well, everything I've heard do far of hers)....now I feel her work generally reflects her experience of lupus & attitude to life...have just ordered the 2015 album that's featured in this interview...you're a ⭐️: so glad of your post 💐💐💐💐

sunshine16 profile image
sunshine16 in reply to Barnclown

Gorgeous lyrics

so moving

thanks for sharing Coco 🌻💐🌻

Barnclown profile image
Barnclown in reply to sunshine16

You're vvv welcome...so poignant...this song makes me laugh & weep at the same time 😂🍀😘

Wow I had no idea that she sung that amazing song or that she had Lupus! Thanks so much Pro and Coco - very inspiring on all fronts. And of course the late Henning Mankell's Wallander is uniquely a series of stories that have chronic illness underlying them all. So that's some powerful pairing. X

maggielee profile image
maggielee

Really enjoyed her music thanks for sharing it.😄 ml

Treetop33 profile image
Treetop33

Love her attitude of no longer being afraid of the disease. Still grappling with that one, but it does force you to reassess your life and priorities.

whisperit profile image
whisperit

Thanks, coco,

I had no idea that they had filmed me during one of my more typical nights to make this video

youtube.com/watch?v=1lI30Qw...

Maybe I should ask for royalties?

x

Barnclown profile image
Barnclown in reply to whisperit

😯 comes up error when I click on it 😧

🤷‍♀️🍀😘

PMRpro profile image
PMRpro in reply to Barnclown

I looked at it earlier - but same for me now.

Barnclown profile image
Barnclown in reply to PMRpro

Glad it's not just me 😉

whisperit profile image
whisperit in reply to Barnclown

Ah, its the official video for "Do You Remember"

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