I was told just over a year ago I most probably had Lupus Erythematosus as all the signs pointed to it, and my Dermatologist arranged for three biopsis, one on the rash on my back, one on the arm and the most important one under my arm - I had and still have two very large red rings under each arm which have since grown going up part of my arms. The rash on my back which I'd had for donkeys years was Lichen Planus, but the other two were said to be inconclusive, you can imagine my frustration. When having the three biopsies the doctor doing them said it is likely it might be inconclusive and you will need to have another biopsy. I said well couldn't you do two biopsies then one under both arm she said no I was scheduled for just the one. Have to admit after the two inconclusive biopsies and the six weeks of no excercising - my joints painful really missed it and the Dermatologist saying I would need another biopsy taking a larger piece of skin I was feeling rough and really not up for another biopsy so cancelled it.
Since then I have been cut adrift, no Rheumatology or Dermatology appointments at all from my hospital, at first I didn't mind but now as my illness seems to have progressed - red rash all the way across the neck and chest area and a rash that seems to have gone to my neck nose and cheeks I am worried. I called my doctor and asked her if she could get me back in with them, she said she would see what they said and get back to me, she didn't but I got a letter from the surgery saying Rheum and Derm were so busy I would have to wait nine months! I am now thinking of having a private MRI done to see if it will show up Lupus so I get a definite diagnosis. Has anyone had an MRI to diagnose Lupus and if so did it show up? Sorry to go on, just concerned my health not great now.