So for the last 3 months I have been dealing with sever pain throughout my body that feels like I've been in a boxing match and have muscle soreness all over my body, but the soreness is so bad that all I can do is sleep to keep from feeling it. And it seems like it's flares of this pain because I don't always have the sever soreness as I do other times. Like this past weekend I spent two days in bed because I couldn't move without hurting. My PCP has has me go to so many referrals, one for pain management; they couldn't tell me what was wrong and wanted me to do an MRI and physical therapy thinking it may be an issue with my sciatica I had over 20 yrs ago. I know that isn't is. I then was referred back to my Ortho Surgeon because I complained of numbness and pain in my hands, and I have carpel tunnel. I already had Carpel Tunnel Release Surgery in my right hand in Aug 2016, and when going back have it in my left hand and still in my right. I got the surgery for the left a few weeks ago. Then I get a referral to the Rheumatologist, they took blood work and say I have no labs that indicate Lupus and no muscle inflammation.
So, this is what I want to know, My Sed (ERS) and CRP rates are elevated, and stay elevated with each blood test, my platelets are elevated and I am Vitamin D deficient significantly. My ANA is negative each time, but I keep getting these flare ups of pain for a days and then aching pain the remainder, I am in constant pain and no one can tell me why. I'm crying all the time now because I am so tired of this and I just want someone to help me. I can't do daily things like clean my home, laundry, dishes, the lists goes on. I am a single mother of two boys that are at the age of needing me for everything right now. I have bribe my mom to come and help me with house chores or at least do my dishes, so that doesn't get out of control. I just want whatever is going on with me to be diagnosed so it can be treated so I can get my life back. Oh, and I have been battling fatigue. I get so tired from just picking up toys some days, and forget when I have to go to an appointment of grocery shopping. Once I'm back home, that's the end of my day, I conk out. Can you have the blood test results I have and possibly still have Lupus that they just aren't seeing. I don't know what to do or what to ask, I feel like all these doctors are doing is taking my money and pushing me off. But this is real to me, I feel it and I know there is something really wrong.