Hi all I’ve never posted before but really wanted some advice - I know no one here is a doctor but I really appreciate your opinions.
I think that I may have lupus but despite having a positive ANA and P-ANCA the GP told me the results were TOO WEAKLY positive to be a concern despite me being symptomatic and was dismissive of a referral or any further testing or a referral. In fact he suggested we may need to look at “how I think about things” which made me feel like I was going crazy.
On a daily basis I am exhausted, nauseated, feel flu-ish and fogged if that makes sense and often have severe one sided headaches (but not the typical migraine attacks that I suffer from). I get pins and needles and burning sensations in my hands and feet on and off through out the day. I get random fevers that come and go without reason and I have no temperature tolerance AT ALL. If I go out in the sun I come out in hives on my arms and back (not prickly heat actual hives) within minutes. All my lower joints click and my back and knees although they don’t swell are extremely painful. My heels swell and become impossible to walk on at random. And I can’t do anything with my hands that involves prolonged gripping or pressure as I get severe pain in my thumbs. I have been told I have Raynaud’s as I get a strange pin prick red rash under the skin in my fingers that feels like tiny shards of glass that then blisters and peels but it happens anytime of the year without the fingers going blue or white. Sometimes I get a circular red rash on the tops of my arms and across my back and faintly on my cheeks but it comes and goes so is not consistent. I get a lot of random sharp chest pain and my kidney results came back as “below the normal”.
In addition to this there is a family history of autoimmune illness in my family as my mum has psoriatic arthritis and Hughes syndrome.
I guess I’m just not sure where to go from here and feel disheartened. This is seriously affecting my life but I don’t feel the GP believes me.
Does this sound like Lupus to you?