This is my first time posting on here so hope I do not do anything wrong or upset anyone!!
This might end up as being a long old rant and I will apologise in advance for doing so.
I won't go into detail of all my ailments just the ones I think maybe relevant to lupus. Feel free to ask me anything about anything, I don't mind sharing my rather long and painful medical history!
About 5 years ago I started to notice my joints were painful and very achy. Not at any specific time of day but I did notice it more when I was overly tired. I also noticed a slight rash across my nose and cheeks which came out of nowhere. A sudden inability to stay out in the sunlight for more than an hour plus strange little blister like spots would appear on my legs, arms and torso.
I have always suffered from migraines since I was 14 but these suddenly increased to 1 or 2 a month. Then the sore throats, swollen glands and random muscle cramps started along with an intense dislike of anything bright and noisy.
Flu like symptoms followed as well as a tiredness that bordered on complete physical and mental exhaustion. Concentration then became non existent and forgetting what I went into a room for along with the inability to name objects even though I knew what a pen was I couldn't say what it was.
Pain in my hands and feet along with the changing seasons or if I was holding anything cold was an easy thing for my gp to diagnose as raynauds.
I am still to this day feeling all of the above symptoms in some degree. I have good days where I feel almost 'normal' and days where I cry because it hurts to open my eyes in the morning, assuming I have actually managed to sleep in the first place that is!
The problem that I and my gp have faced is that this is not the only health problem I have had going on so trying to get to the bottom of it has been a blooming nightmare.
My last lot of bloods came back as high crp levels, 40 something I think, anemic, nothing new there, but everything else was ok. Can't remember all that my gp tested for but I know that my last test for lupus was negative but I felt ok when that one was done.
I am under 3 different consultants for various things and they all say the same thing when I give them my long list of symptoms......
That isn't anything to do with what I am treating you for, tell your gp or one of the other consultants.
Sorry for going on or sounding like I am complaining. I do not like to moan and complain as I know there are people who have it was worse than I do but a person can only take so much!! I just want a medical professional to say to me this what you could have and this is what the plan of action is and we can try this or this. Being given a diagnosis would be nice but just being able to manage my symptoms would be perfectly ok as well!
Really really tired now so going to lay down on my new memory foam mattress!!
Thank you for reading you deserve a gold star if you got to this part!!