I have been sick for a few years now, started with Migraines, then rapid heart rate, then joint pains, nausea, dizziness, 4 years ago was rushed in for emergency blood transfusion, i had been having monthly blood tests for approx a year prior to this, as my platelets were high as were my inflammatory markers. and since that first transfusion, i have been having them ever since, more or less on a monthly basis, then tried some surgery to stop what they thought was causing bleeding. (even though i have never seen any sign of blood) but that failed so between transfusions and iron infusions as tablets don't seem to work is basically part of my life now. i then got diagnosed with Epilepsy within 2 areas of my brain and hot on the heels to that was hypothyroidism caused by Autoimmune disease and Sjogren's syndrome another autoimmune disease and also told i had chronic kidney disease. So was packed off to see a Rheumatologist as on top of all of this my joint on my hands a quickly becoming disjointed and very painful as are my knees lower back and neck,
After an intense visit and numerous tests, he said i had fibromyalgia as well as all above, and Arthritis but i had also had a "Slight" positive test for Lupus!????
Which i believe is another autoimmune disease, and reading about it and all the symptoms and complications seem to match all the above.
So here are my questions and i hope someone can help me not feel crazy. Have any of you had all this hassle before you were diagnosed? Can these things happen like the "domino" effect it seems to have done with me? How can you have a "Slight Positive" test surely you are or your not? And finally, i did use to love the sun, but now it's not so much needing to be in the shade because of lesions it's the light i can't stand! although I'm no longer allowed to drive, even as a passenger i can't stand it, and have to stop because it can make me so nauseated or trigger a migraine. but yes i do get lesions which twice have been mistaken for shingles, but i also can't abide the heat.
So please let me know your stories, do you have a number of autoimmune disease/syndromes or just lupus. or is it lupus that causes the others.