I've had a couple of headaches again the last couple of days. I only just feel like I am coming out of that horrendous flare with progressing headache, that lasted 5-6 weeks. Energy levels are slowly improving too. But the headaches are currently the bane of my life. This one is back to the "migraine headache with myalgia" (as GP describes them) pain and aching behind the one eye, that I have experienced before, many a time.
I have also had little pains in my jaw and neck the last week - lingering flare thing I think. But I am sure this is all linked, headaches and facial pains and lupus flare.
The children are now off school for just over 2 weeks now and we have guests arriving on Monday for 5 days. They are great guests and will help and my children are so excited. I started getting the spare room and beds ready today and am now shattered!
It's always the way with me. We don't plan too much, for my sake, but when we do have plans I get exhausted in the prep, before the main event has even started!
I still have those steroids tablets in the cupboard and now that I have had my 2nd MRI to check this syrinx cyst and my sacroiliac joint, I feel that I am very tempted to take 5g a day to help me get over this flare and maybe reduce the headaches. When I was on steroids last year, the headache and other symptoms virtually disappeared and I felt alive again. Should I? Shouln't I?
(By the way, the MRI report hasn't been received by GP yet. I asked yesterday when I went for my smear - oh joy! Really hope it's reported on and I can get a copy before appointment in London on 21st!)
The Rheumy Nurse has made their feelings very clear. But I'm so tempted to be naughty and defy this. Which actually is not like me. I usually stick to the rules. But I am sick and tired of feeling sick and tired.
Grumble over. 13 days and counting.