Good bye 2016, Hello! 2017

2016 has been a bit of a flop for me but with a few flips :)

Still no answers surrounding all my symptoms oddities and still no appt for ENT; Neurologist or Dermatologist who specializes with immunology.

Feeling positive about 2017. I have decided to leave my current GP and go find myself a new one.

*Sigh* but it is still exasperating.

The best things this year for me is, finding this forum, discovering the beautiful benefits of Prednisone and having the opportunity to meet a wonderful walk in Dr that truly cares about people and takes their health seriously (too bad he is halfway across the country).

Auto immune is a tricky dicky and has definitely shown it's true colours to me this year. I am hoping that the new year will give me the strength to discover what's brewing inside me so that I can let my true colours shine and plan my days ahead of me with open arms: a smile on my face and the energetic to help empower of all those I encounter.

Not counting the days but I am counting on the new year for new positivities :)

Xoxox

9 Replies

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  • Wishing you well, 2017 just around the corner and new positives are a good way to start.....still getting my head around it all too....ML

  • I hear you! 2016 was a horrible year for me. I am still trying to figure out all of my symptoms and finding the right dr who can help.

    What are your symptoms?

    LK

  • Ack! Where do I begin! Lol

    Headaches,both mild and severe, daily

    Pressure in my head (like bruise)

    Twitching of facial muscles

    Leg and hand tremors

    Stiff, painful neck

    Jaw pain

    Dental problems (lost three teeth in three years, very very dry mouth)

    Sore throat

    Random runny nose

    Constant phlegm (mostly clear and bright neon)

    Fuzzy vision, vision changes occasionally

    Floating white and black spots in vision

    Pain in and around my eyes

    Plugged ears (feels)

    Muffled hearing (hearing test rated perfect?)

    Sensitivity to lights (ESPECIALLY led)

    Excruciating pain in ears, mostly left, occasionally right and seldomly both simultaneously

    Ringing in both ears

    Diarrhea (almost 6 months non stop)

    Upset stomach, really bad acid reflux

    Bones and joints randomly ache

    Swelling

    Stiffness of joints (very mild) on most of body

    Cough

    Shortness of breath (sometimes I feel like I can't enough air, shallow breathing)

    Chest pain

    Temperature - hot and sweaty to freezing cold, nothing warms me up

    Dizzy spells

    Loss of balance

    Gait gets off sometimes. Funny though, I'll be walking then next thing you know I'm veering off to the left or right haphazardly lol

    Heart palpitations

    Tremors (hand, leg)

    Burning and stabbing sensations throughout the body

    Pins and needles!

    Feeling like I got punched in my back by the bra line (both left and right side)

    Motion sickness

    Light-headedness

    Mood swings! (But I have been diagnosed with Cyclothymia)

    Disorientation

    Feeling like I am losing my mind

    Hard time falling asleep (I use to be able to hit the pillow and lights out for 12 hours or more)

    Panic attacks

    Memory loss! Oh the memory loss

    Easily confused (I use to be EXTREMELY witty and very very with it)

    Hard time concentration (cannot have ANY distractions)

    Slowed and slurred speech

    Cannot find the right words to use in a common or complicated sentence (which is terrible! I use to write and had an extensive vocabulary)

    Stammering speech

    Forgetting how to perform simple task....How do you turn your car lights on again?)

    Phantom smells

    Extreme fatigue, lethargic

    Continual infections (feels like I'm antibiotics every 5-8 weeks, ugh)

    Aching feet

    Fatigue after about 30 mins after eating and immediately after a focused conversation

    Very dry skin

    Mottled skin, I feel like a walking blue bee hive

    Hair loss and lesions on face (but that's my Discoid)

    Low WBC, platelet, b12 a few others (can't remember)

    There are more (just can't recall at the moment, this list is one I have made and copied here).

    Almost all these symptoms come and go,wax and wane. Muscles/tendons? Feel twangy if that makes sense.

    Anyway, there they are :)

  • Gosh I wonder how we get on sometimes. Mine are still unresolved too.

    Ive been sick for the past 6 months. Every single month without fail I get struck with SOME sort of infection. Chills, fever, sore throat, severe body aches.

    It varies in severity. Some months its just a head cold and other days i am i bed for 4 days or in the ER on a drip.

    CRP (inflammation marker) is always high even when i am feeling some what normal.

    I also have a sun allergy - when exposed i get a horrible red itchy rash!

    I guess the next stop for me is an infectious disease specialist and my haematologist. I hope its not cancer :(

  • Hi,

    I'm not a Dr but I do not think it is cancer. I too have the sun sensitivity.

    Dermatologist has put me on cycling Prednisone and it has reduced many of the symptoms...While I am on a dose of 15mg or more :( tomorrow I lower my dose to 10 mg a day. It's amazing how I feel the difference as I decrease my pills and taper off.

    When on them I have so so so so so much energy! Literally, for me, it's like...Quick! Get everything done around the house NOW before the energy depletes with tapering off the meds!

    Like tonight for example, I actually put new curtain rods up (dual rod system at that) and hung 8 panels! Without the meds, well my front window sat bare for over a year. Just couldn't do it. Zero energy and constant nagging aches/pains.

    Been tested for SALE (blood work only) and I'm clear (amen). Been tested for Lyme a, clear again. Next step...MS... Hopefully 2017 will have some answers and an attack plan for me so I can get back to living! :)

    Hugs

  • Hi Lara,

    You poor thing! So you havent been diagnosed yet?

  • Not entirely! Hoping 2017 will bring me some answers :)

  • I've had Lupus a# of years.New issues keep popping up.Frustrated.I keep praying.Be careful with prednisone.I won't take any more.I'll will be praying for you.

  • I found yet another swollen and somewhat painful gland under my arm last night. So now it's in my neck and underarm. Freakish out.

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