My voice is going bye bye ?!?

[katidid]

My fog is not letting me remember if I reached out about this, but my hoarseness and inability to control my voice is getting worse. Much, much worse. Doc said it could be that the inflammation found its way to the tendons that connect to my vocal chords, but I mentioned to him that other things, like excitement, stress or fatigue make it works. Think it could really be inflammation. I sound like a frog. At work, I've asked not to present anymore. If I can barely stand listening to myself, I'm not sure the audience likes it much either!

[katidid]

Correction: *worse*

[charmaineholmes]

Hi I've lost my voice since August I was n the new drug belimumb but stopped as its was making voice worse came out of hospital yesterday had a biopsy done in case it's omething else but Drs said they couldn't see anything bad down there so think it definitely the drug caused it. I been given a nebulizer to use it helps get moisture in mouth so alot more comfortable for me. I Hope you get yours sorted soon x

[katidid in reply to charmaineholmes]

I ran out and bought two humidifiers and closed myself off in a room. Definitely feels better. Still shaky but less hoarse. My mom has Sjogrens and I’m wondering if my hoarseness might be due to that and not Lupus.

[charmaineholmes in reply to katidid]

Could be I have sjogrens too x

[Joy_1 in reply to katidid]

I know someone who has Sjogrens and she has a hoarse voice.

I have UCTD and when I first became unwell I developed a hoarse voice. Nowadays it is fine but if I flare or am v tired the hoarseness sometime returns.

[MNJones76]

I too, have been recently diagnosed with UCTD, Sjogrens (2016) and have a hoarse voice. I lost my voice a few years back (2009) and it never fully retuned. After seeing ENT doctor, it was discovered that my GERD had damaged my vocal cords. I never thought that it could be related to my auto immune issues.

[katidid in reply to MNJones76]

I have Barrett’s esophagus (a level up from GERD) and I always thought it was related to the acid as well. The only thing that seemed different is that under stress or during a bad fatigue flare my voice goes out. Sometimes hoarse and sometimes just fails. Possible combination of both?