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LUPUS UK

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Tiras profile image
Tiras
β€’23 Replies

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For those of you who know me, you know my sence of humor. I saw this and I had to post this photo. I thought of Crusee. She told me I had beautiful legs I had to laugh. That is something a guy doesn't get very often at (least not a normal guy).

We have to laugh and make the best we can when we have Lupus.

So Crusee I saw this and thought about what you told me! LOL!

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Tiras profile image
Tiras
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23 Replies
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Crusee profile image
Crusee

Course you do Tiras you give it full justice!

After all the postings on your legs I would recognise them anywhere.- ha ha.

Tell me is it body shop you use or just plain old baby lotion?- lol! ( only teasing)

Take care,

Crusee

Tiras profile image
Tirasβ€’ in reply toCrusee

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Crusee;

Actually I use coconut oil daily. Can't live with out it. That may be the reason my legs are soft and silky! LOL! πŸ˜‚πŸ˜‚πŸ˜‚

Have a great evening

πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£

Lorelei profile image
Loreleiβ€’ in reply toTiras

Tiras,

I love a good health & beauty tip!!

Lotelei

Tiras profile image
Tirasβ€’ in reply toLorelei

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Lorelei;

After shower I don't use a towel I put coconut oil on while I am still wet, then air dry and let the oil absorb into your skin. I try to stay undress for 20 to 30 minutes to let it absorbe in. After 3 or 4 days of doing this you can feel the difference. I will then apply as need during the day. This was recommended by my dermatologist .

Sometimes it is impossible to stay nude for that long.

Laura also has started doing this. I can tell the difference in the way her skin feels if she misses a day or two.

Give it a try and let me know if you can tell the difference?

πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£

Lorelei profile image
Loreleiβ€’ in reply toTiras

Tiras,

I'll try it!

Lorelei

Crusee profile image
Cruseeβ€’ in reply toTiras

Ah now I know secrets out.!

Crusee

XX

Tiras profile image
Tirasβ€’ in reply toCrusee

πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£Oh Crusee;

That's been exposed for years. Now! Ha Ha

Speaking of exposed, It is 5AM here, it is almost time for me to start getting ready to go to the lupus research center for the quarterly complete and totally exposed exam!

πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£

Crusee profile image
Cruseeβ€’ in reply toTiras

Eek! Sounds very exposed.

Crusee

X

Tiras profile image
Tirasβ€’ in reply toCrusee

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Crusee;

Made it through it today, and yes was totally exposed for over 4 hours while they examined every nook and cranny for lupus rashes/blister. Had some old ones going away and I did have a few new places starting. It is pretty much the same at every exam.

I've gotten used to being barefoot and exposed because of lupus!

Have a good evening.

πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£

Crusee profile image
Cruseeβ€’ in reply toTiras

Glad today is all over for you.

Joking apart it must be a pretty traumatic experience.Good to hear that some if the o,s blusters going away but unfortunate that new ones appearing but I suppose if that that I'd the norm then it's to be expected,and at least it's being closely monitored..

Evening almost over now but enjoy yours.

Take care,stay well.

Crusee

XX

Tiras profile image
Tirasβ€’ in reply toCrusee

πŸ‘£πŸ‘£πŸ‘£

As I have said before, I f what I go through will find a cure for lupus or can help one person, then it is worth it. πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£

Crusee profile image
Cruseeβ€’ in reply toTiras

What a great attitude Tiras

Crusee

X

Tiras profile image
Tirasβ€’ in reply toCrusee

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Crude;

I forgot to tell you on occasion, there is this gorgeous lady name Laura who will apply the coconut oil on me!❀️❀️❀️ ❀️❀️❀️❀️❀️❀️❀️❀️❀️❀️

πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£

PS- Laura wants to know why you are admiring my beautiful legs?

Ha-Ha- just kidding and having fun. She said admire all you want but, no touching! πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Crusee profile image
Cruseeβ€’ in reply toTiras

Ha ha.

She has nothing to worry about.

Isn't she kind hearted applying the cream?

My daily routine is medical gels on them.Haven't dared try anything else in case I set problems off again.

Oh we'll see how it pans out.

But if it changes then coconut oil will be my next port of call.

Take care.

Hey just remembered Marilyn Monroe had her legs insured for Β£1m- you should consider it Tiras

Crusee

XX

Tiras profile image
Tirasβ€’ in reply toCrusee

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Crusee;

If you saw the rest of me you would not even want to consider it. Apparently my legs are the only good side I have!

Yes Marilyn Monroe legs were insured but, she got killed! LOL!

Take care and have a good weekend!

πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£

Crusee profile image
Cruseeβ€’ in reply toTiras

You too.

Crusee

XX

Cookiecutter76 profile image
Cookiecutter76

LOL! I'm so grateful you post on this forum Tiras - you offer inspiration and humour and we all need as much of that as we can get!

x

Tiras profile image
Tirasβ€’ in reply toCookiecutter76

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Cookie;

I love to laugh and have fun. If I can make some one else who has our issue, laugh or smile for a few minutes to feel better then I have succeeded in helping some one.

Y'all help me a lot also, so it goes both ways!

πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£

creaky profile image
creaky

Thankyou all for making me smile this morning, now where did I put that coconut oil...

πŸ˜€ πŸ˜€ πŸ˜€

Tiras profile image
Tirasβ€’ in reply tocreaky

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Creaky;

I'm glad it made you smile!

I know where my coconut oil is, it is from my head all the way to my toes! 😜😜😜😜😜😜😜😜😜😜😜

πŸ‘£πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£πŸ‘£

creaky profile image
creakyβ€’ in reply toTiras

Haha, so I hear ☺

CQueen profile image
CQueen

So , I was watching youtube videos to help self- educate about my sle and I ran across this one that was actually made by a nurse who also has sle herself. It's not the type of video I was looking for but in the midst of all of the overly serious videos I was watching I actually needed a laugh. Sorry if it offends anyone but for most of us we can relate to what she's saying lol.

youtube.com/shared?ci=L1n3N...

Tiras profile image
Tirasβ€’ in reply toCQueen

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CQueen;

Yep, that is about the way it is. Yes, we have to laugh at ourselves. I will have to try the one she said, get naked and cover myself in mud! LOL.

I wonder if just any mud will do?

Thanks for the laugh. I need it today!

Wishing you the best!

πŸ‘£πŸ‘£πŸ‘£πŸ‘£TirasπŸ‘£πŸ‘£πŸ‘£πŸ‘£

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