Hello people! I'm doing so-so of late. The Simponi may not be working so well anymore - I have an appointment with my biologics clinic in a month but I have no idea what I'm going in for, so I will have to call in and find out.
Recently, my ex-husband called me and asked me to get a referral for EDS. I scoffed because I don't think of myself as hypermobile. My joints don't bend, they pop! I do have a few indicators, like virtually see-through skin - this is my inner elbow, but I look like this everywhere - like a roadmap), and I can bend my fingers back into the 'flying bird' (I asked my Dutchman if he could bend his fingers back with his palm flat on a table - when I did it he looked a bit green and said 'Darling, no-one can do that!). I can bruise from a stern look, but I've never really though about EDS. However my ex-husband met someone with vascular EDS recently and they were gracious enough to talk about their illness, at which point my ex promptly rang me and said 'This is you, every single symptom.'
I'm not really sure what the overlap between EDS is and RA or Lupus, or even how to get anyone to look into it - if it's anything like the last ten years, I shudder to think of what a nightmare it will be to convince my GP to give me any referral or take me seriously on this. I'm not entirely certain I'm convinced myself - for me, all this is normal, so I don't know how to describe a symptom when I don't know any other way of function, but it might answer some questions about why paracetamol and ibuprofen are next to useless, why my joints pop and overextend (I am wearing knee splints now as I took a bad step a few days ago), and might help to give me another ace in the hand I've been dealt.