Since I've been diagnosed (3 years ago) I've been helping my husband with his business which has been perfect as I can work from home so even if I'm not feeling too great I can still help him out. I also look after our 3 kids , taking to after school clubs etc and take care of all the household chores.
A few weeks ago, we were discussing the possibility of moving house but to do that I'd need to go back into work which would help us get a bigger mortgage. At the time I was feeling ok so it seemed like a good idea. Managed to get myself a job which starts tomorrow (community nursing with elderly) but the problem now is that I'm feeling really terrible. (Achey, fluey, not sleeping, coughing, malar rash etc) I think I'm in a flare ( am seeing rheumy today so she'll be able to confirm that) and I'm beginning to wonder whether going back to work is a good idea, are the hours going to make me feel iller (work is 7am -2pm, 5 days a week, every other w/end). I like the fact that I'll feel like I'm contributing financially and not being a burden on my husband but really hate feeling so poorly. I can see the kids really worrying about me when I'm feeling poorly and hate putting them through that. They even said this morning that they'd rather me be well than have more money! Don't want to start the job tomorrow if I'm not going to be able to continue but also don't want to be using my lupus as an excuse!
How does everyone else manage?? advice much appreciated.