Hi I'm a 19 year old with Lupus. I've been diagnosed for about 4 years now and I was just wondering if anyone else has had the same annoying and irritating and demotivating experience as me when it comes to bathing and showering.
In my experience, I get this uncontrollable itchyness after showering. I've been having it since I got diagnosed. There is no red rash unless I excessively scratch the area, which is weird and annoying because I find no ways to sooth the itchyness. It happens predominantly around my legs and arms but sometimes happens around my torso too. At first it used to be for the time span on 45 mins to an hour, to which I got sent to the dermatologist. They gave me this menthol based cream. It didn't help in the winter. I use baby oil before showering so I get less exposure to the water. And have showers that last maybe 1/2 minutes to reduce the itchyness after showering. Even after all these ways of coping the itchyness lasts about 20 mins now.
It's a really demotivating experience, and makes me not want to shower AT ALL, sometimes even going without showering for as long as 3 weeks. (I know that's disgusting!)
I wanted to know if anyone else has had this experience, and what they did to cope with it, and even if they knew what it was caused by.
I am yet to go to the dermatologist again but I don't have high hopes.