Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160)
he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population have positive ANA so it was not significant!
Below are a list of my symptoms. Is the man brain dead or just plain lazy?
Starting at the top!
Hair falls out (always and for many years) saw a consultant about it 17 years ago
Headaches which last all day (sporadically)
Brain fog, forget what I'm doing, stop doing things mid task, forgetful etc (sporadically)
Had an unexplained seizure 12 years ago)
Extreme fatigue, fight to stay awake in the afternoon, can't go out on a night. (always)
Droopy eyelids (sporadically)
Ulcers in nose (sporadically)
Crackling sound when i move my head. (always and for many years)
Neck pain (sporadic) MRI shows multilevel degeneration
Shoulders always ache
Collar bones grate when I rotate my shoulders (sporadically for many years) saw a consultant about it about 10 years ago
Lose feeling in both arms when bending at the elbows. (always for the last 2years) negative nerve conduction tests
Shooting pain/ache in thumbs and index finger joints, can no longer carry bags and driving/ironing is painful (always since about 9mnths)
Extremely dry cracked skin on hands (sporadically)
Chest pain (sporadic)
Palpitations/racing heart (sporadic) saw a consultant about it from being a teenager
Lung problems in the past which needed hospital admission/regular physio
Pain in rib cage which is worse on the right side has been ongoing for 2mnths affecting sleep
Chronic back pain (constant for at least two years) MRI shows disc disease
Feeling terrible hungar pangs but then full after a few mouth fulls of food. Then feeling stomach pain for hours and hours after eating (sporadic)
Heavy, tired aching legs. Terrible shin splints after walking less than a mile. Reduced numb feeling in left leg after sitting down for five minutes. Had to change manual car for automatic as I was unable to use the clutch effectively.
Very painful achilles tendons and pins and needles on soles of feet when waking on a morning.
Positive ANA blood test three times in a row.
What do you guys think?