Is rash itchy?

[ac489]

I have not had rash on my face, just on arms. Right now I have a rash on top of my behind. I read on a website that Lupus rash is not itchy. My rash is not itchy all the time but it does itch sometimes. Does anyone else have rash on body and does it itch?

[Circles]

Hi circles here not fully diagnosed yet but I too have rashes.I have red rashes on face and forehead that don't itch but get a rash at very base of back and that does itch.Also red raised rash on arms just above wrists like a raised red band and bottom of legs get red and feel very hot.Back to reumy in a few weeks.Used to get a lot of itchy hive like sores on top of back,chest,top of arms but not so much now on plaqeunil.I Take care x

[Christine-29j in reply to Circles]

Hi circles, I have raised rashes on my arms from my wrists upwards these do itch and then my head drives me nuts then across my chest .I do get scabby type sores on my scalp . I do find that ice cubes or anything frozen does take the heat out and therefore the itchiness but nothing solves it for me. Keeping yr skin hydrated also helps. I cream everyday.too.

[ac489 in reply to Christine-29j]

wow, I always just thought the scabs on my head and itchy scalp were from dry scalp. Never thought about it being a Lupus symptom.So many issues to deal with, with this dreaded Lupus

[Circles in reply to Christine-29j]

I asked gp 30 years ago on numerous occasions about sores on scalp was always fobbed off with try this shampoo or try this.Also other type rashes which would come and go on body replies were looks like ringworm, maybe touch of ezema maybe dry patches and so I gave up asking.Its hard enough now to get diagnosed so had no hope back then.Now I have chronic pancreatitis Raynaud's resting tachycardia all sjogrens dryness and I know I have lupus but only lupus syndrome mentioned so far. Also had the fatigue constant cough some dryness and 3 misscarages and that was in my late teens and early twenties.Only started getting checked out in the last 2 or 3 years but felt really sick on and off since teens.53 now. I still find it unbelievable what people have to go through. Anyway upwards and onwards.So sorry for the rant but some doctors really infuriate me.thanks so much for your reply Christine-29 take care.

[Christine-29j in reply to Circles]

Oh you poor thing circles , so long and I thought 15 years of unexplained problems was a lifetime but yours have been. As with u I had been going with all sorts of things and as u say,take this take that, fobbedoff all the time. Well earlier this year I had enough my whole being was terrible I even went to councelling last year for depression so fed up with myself getting nowhere. Well I found this site and so many people had the same or worse symptoms to mine , I simply wrote them all done went to the docs and asked to be referred to anyone at the hospital who could help. I've seen the rheumatologist and am now going back for dermatology am so positive now and I have slept for the first time in twenty or so years, I thought my problem was my disabled daughter then. How wrong was I. I hope this helps u to feel better boutyourself and nno worries about the rant it helps us all you take care too

[ac489 in reply to Christine-29j]

I feel bad for you all that have been dealing with this for so many years. I have had symptoms off and on for about a year and a half but only last few months has it been worse. I can not imagine going through this for years, I am so tired of it already.

[Circles in reply to Christine-29j]

Thanks Christine-29 ,nice to hear you feel a little better and positive.I feel a lot better on plaqeunil for last 8 months and at last getting somewhere I hope with all this.Have always felt something was wrong but with getting fobbed off just carried on like everyone else here.Am very lucky compared to most Thank God for this site as has really helped me make some sence of all this.If we all have to fight to get diagnosed and treated I am at least armed with some information at last thanks to Lupus UK.

[ac489 in reply to Circles]

Sorry to hear you have been dealing with it so long. I am so tired already and it's only been a few months. I don't even have as many problems as some of you on here. I feel sorry for myself some days, then read posts about the many health issues other people are having and have to be thankful mine seem minimal compared to others.

[Circles in reply to ac489]

Thanks ac489 its OK to feel sorry for yourself at times we all have to. We are all stronger than we think dealing with all these issues and trying to get it sorted out by docs.Hang in there this is the best place to get information as I would be lost without it.

[Christine-29j in reply to Circles]

Hi circles, and ac489, I am in total agreement . no one on here says or tells you what to do just reading other peoples stories helped me and I'm sure others to get their problems together to be able and confident to take it to the docs and say this is what could be wrong please send me somewhere to see specialists who could help . stay wellx

[ShannonB]

My lupus rash is nearly always itchy and can appear around my body. My rheumy says this is not as common but not unexpected.

[ac489 in reply to ShannonB]

Ok,thanks. Just wondering if it was connected since mine is itchy at times.

[babssara in reply to ShannonB]

Hi Shannon. I am being investigated for lupus. My hands, especially my knuckles itch like mad. Dr gave me Eurax cream which soothes for about 5 mins. Is it possible to get the itch without the rash? Babs x

[ShannonB in reply to babssara]

Yes, my hands are frequently itchy without much noticeable rash.

[babssara in reply to ShannonB]

When I responded to your reply, further down the page up popped another post about cancer. I think it was a troll. Did you see it? I've asked for it to be removed (or maybe my eyes were deceiving me!!!!)

Thanks for the response. itch drives me mad!!!!!!

X

[Paul_Howard Partner LUPUS UK in reply to babssara]

Hi babssara,

I picked up your comment on this post:

healthunlocked.com/lupusuk/...

Thank you for reporting the message, which was included as part of the original post. To make certain that these are picked up in future, please use the 'Report' function if possible, otherwise they may get missed. Thank you.

[babssara in reply to Paul_Howard]

Sorry, new to this site so idn't know about the report button. I was just a little concerned at the content. Thanks Babs

[Paul_Howard Partner LUPUS UK in reply to babssara]

No problem. Thank you for bringing it to my attention.

[ac489 in reply to Paul_Howard]

I didn't see another message. Did I post something wrong?

[Wendy39 in reply to babssara]

Hello. I have just posted on this question but them saw your reply - my skin itches even where I don't have rashes. I currently have itchy palms & hands. It is so difficult not to itch and I have itched and made them sore. No rash on hands. It's unbearable. I don't have Eurax. I have Cetraben and 3 different steroid creams.

[Cindylynn]

I get spotty, and itchy! Usually on my back and arms - not sure why, but dr gave me mamtasone (so?) a cortisone cream that does the trick and clears it up.

[ac489 in reply to Cindylynn]

Doctor told me to use cortisone 10 and it works to dry up rash but it comes back again.

[madhead]

Hi ac489,

yes i too have a rash on my arms and legs and it does itch badly i have bruised most of my legs with scratching, I have made myself bleed on most of the affected area's its not pleasant and the warmer you get it gets worse.

I went to my GP and i have been put on Prednis- again!! it has helped a little i also have been using Hydromol ointment which you can use as soap, shower rub or just put on your skin direct. This helps to moisten my skin and is soothing for a while. I also use Diplabase cream to top up after applying the Hydromol.

I also take Antihistamine's as a top up.

I have subacute cutanious Lupus which is not supposed to itch but i beg to dither.

everybody is differently with this condition.

You just have to experiment with different products to find the one that suits and help you.

I am going to my Dermatology apt in two weeks time and will ask them for advice as i have had this itch for a whole month.

Hope it improves for you.

[ac489 in reply to madhead]

Yeah, I have had mine for a couple of months too then when I read that Lupus rash was not itchy, it made me wonder if it was not related. I guess it is not the same for everyone.

[Willowrose8]

Hi I'm new on here, but I also have terrible burning excruciating itching from the base of my head down my neck my arms my stomach the top of my behind my legs my calves especially, I feel like I'm losing my mind it itches and burns so bad I want to take a knife and cut off my skin… Is this normal with lupus I've had it since 1972, and this is the worst it's been the pain everywhere is excruciating and the itching is making me nuts… I don't know what medicines, to take not to take what helps the itching nothing seems to help so far prednisones just made me big and fat I have horrible side effects to the Hydro stuff… I am at a loss as to what to do on top of that I have fibromyalgia and bursitis etc. just everyone else I suppose headaches you name it can anybody give me any advice…?

[Wendy39]

Hello. I feel your pain, or rather your itch! I have SCLE, Subacute Cutaneous Lupus and I have numerous skin problems, I won't list them all here. But my type of lupus, I have been told doesn't itch. Well it does. The doctors are wrong. I can scratch myself in various places until I bleed. I have tried many types of moisturises. I take two anti histamines a day for my allergies and to stop my itching but it doesn't work. I currently have the itchiest palms and hands I have ever had. I have made my hands sore and cracked with my scratching. This week I have used a steroid cream on them, which for me is a last resort, as I know in the long term it is no good for your skin, 3 times and it does give some relief until you have to wash your hands and it comes off. I wish I could tell you if some miracle pill or cream but I can't. If you find a solution, please share. Best wishes.