Non itchy leg rash

[Tiggywoos]

just a quickie as GP didn’t have any idea 😳. I know we’re not Drs and can’t diagnose but has anyone had this rash before ?

both legs lasted 2 weeks . Didn’t itch

Thank you sooo much for looking . Hugs , ☕️ 🍫 for all xxxx

[soul22]

HiNot sure

Could be lupus related

[Tiggywoos in reply to soul22]

Thank you ☺️ pharmacist said systemic 👍

[soul22 in reply to Tiggywoos]

Your welcome yes definitely I had it before not as much rheumatologist saw purpura if search it images .

Rheumatologist or dermatologist needed can you email in photos to rheumatologist nurse helpline .I have that option because my cancer

I get it on my feet

[soul22 in reply to Tiggywoos]

There few types of purpura Can be any those

You have alot I'd send in pics glad help mine was much milder.

All best update us ☺️

[Tiggywoos in reply to soul22]

Thank you angel . I’ve emailed to consultants secretary . It only lastest a few weeks and has gone now . Annoyed really should have gone to GP at time but did see pharmacist who said get a good pic . Had it several times before but doesn’t last

[soul22]

Ok that's best rheumatologist will put it on file glad didn't last long

[Redwine53]

I had loads of small pimples on both my forearms, just skin coloured, my rheumatologist felt them and didn’t seem bothered. Investrust lupus, systemic scelerderma and myositis. They are slowly slowly fading away.

[Tiggywoos in reply to Redwine53]

Thank you 🙏

[Numptybrain]

I’ve had these a few times over the years but I’m only recently diagnosed lupus sle.

Take care

Wendy xx

[CecilyParsley]

Hi Tiggywoos,

I have had something similar during a bad flare. No itchy stung when showering. GP didn’t know what it was and my then Rheumatologist said : I am not a Dermatologist”. So I was never any wiser sorry xxx

Leg rash

[Tiggywoos in reply to CecilyParsley]

Blimey Charlie. That looks so sore 😢xx

[CecilyParsley in reply to Tiggywoos]

The pain was from inside the legs really. My Rheumatologist was so disinterested. He actually shrugged 😡 xxx

[Tiggywoos in reply to CecilyParsley]

Eeek yes you’re right the calves were painful .. think we get so used to pain we sort of file it 🤦‍♀️xx

[CecilyParsley in reply to Tiggywoos]

It is painful. I struggle to walk anyway with two knackered knees so it was quite debilitating for me. Xxx

[Tiggywoos in reply to CecilyParsley]

Nice to know you were taken seriously 🤦‍♀️😭xxx

[CecilyParsley in reply to Tiggywoos]

I don’t think I ever have been to be honest 🫤 xxx

[Tiggywoos in reply to CecilyParsley]

we all love you and take you seriously 😘❤️xxx (ps I know what you mean 😳)

[CecilyParsley in reply to Tiggywoos]

Oh bless you. That is so kind of you. I meant the Rheumatologists. I had a Rheumatology Nurse tell me last month that it was patients like me that made life difficult for clinicians like her. I had just told her that I had booked my DMards bloods but ended up in A&E until 3 am with a blocked bowel. You really do have to wonder about these people and why they do their job xxx

[Tiggywoos in reply to CecilyParsley]

I sort of have no words 😶.. I think I nice juicy pension and plenty of sick pay might have something to do with it for some not all but some 🤦‍♀️xx

[CecilyParsley in reply to Tiggywoos]

My GP wanted to make a complaint for me but I will do it myself if she keeps it up. The last one said that it was no wonder I was in pain given my weight. She asked if I had heard is salads and remarked someone my size should never eat carbs. I was honestly speechless. I am a vegetarian and have salad 4-5 tines a week. What gives them the right to judge? They should walk a mile in our shoes xxx

[Jenfy34]

I have SLE and yes I get this all the time on both legs. Can go quiet for a few days and then back come more. My legs are permanently marked now. My rheumatology has always said it is Purpura. Had the ANCA test, negative, so it's no Vasculitis. Hope this helps.

[Tiggywoos in reply to Jenfy34]

Gosh that’s so interesting thank you ! As I do have permanent marks on one leg and the others come and go like yours . Had blood test yesterday for Betchets .. xx

[Stills in reply to Tiggywoos]

Cecily parsley knows about that I think and I see she’s in this thread already and hope she may help

[Tiggywoos in reply to Stills]

Thank you stills xx

[Stills in reply to Tiggywoos]

I find GPs bemused by our strange AI skin rashes. I have one that grows in a spiral pattern in groups all over my torso these last 35 years. Age spots declared the dr 🧐

[Jenfy34]

I've never heard of blechets, please post the results. I was diagnosed with SLE in 1979, so I have had many years of Lupus flares and everything that goes along with Lupus life. The rash was actually my very first symptom, at that time it took 2 years to diagnose. Be happy to answer any other questions you have, if I can help. X

[Tiggywoos in reply to Jenfy34]

That’s so kind thank you …. I’m like many others on here bounced around with diagnoses … Betchets pretty rare I think and apparently you can test positive and not have it . Blimey we’re a complicated autoimmune bunch on here ! You’ve had lupus a long time 😞😘xxx

[Jenfy34 in reply to Tiggywoos]

That we are. Yes a very long time. Xx

[Suvi8901]

Looks like some kind DEPIGMENTATION/over pigmentation ?process going on, very speckled?

Query vitiligo? which is an autoimmune condition with T lymphocytes attacking melanocytes, pigment cells differentially.🧐

Darker skin sufferers get whitish patches all over?!

BTW I would definitely NOT expect any GP to be a competent dermatologist these days or ever. They simply do not have the training. No apologies.☝️🤣

I’ve got SCLE properly diagnosed now vitiligo is knocking on the door! Sad.

[Tiggywoos in reply to Suvi8901]

Thank you suvi and you’ve raised interesting point . I do have vitiligo on my left arm which I thought was prob just side effect of hydroxy as been on it years . The legs rash was different to my arms . Be interesting ti see what rheumy says if anything .

I’m sorry about your vitiligo is it all over ? . My GP shakes when he looks in my ears 🙄 so my expectations are low when it comes to him looking at rashes that’s why I went to pharmacist 😂🤦‍♀️xx

[Suvi8901 in reply to Tiggywoos]

“I’m sorry about your vitiligo is it all over ?”

-+-+-

Only very mild around my genitalia!

[Tiggywoos in reply to Suvi8901]

Ah no just left arm 🙂xx