Hi all, I joined this site last night after being recommended by a member I met at a Lupus Coffee Morning at Basildon Hospital. I've a feeling it's going to be the best thing I've done in a while. I've only resently been diagnosed with SLE after having one too many cortisone injections and then asking why, why at the grand age of 'nearly' 50 am I having these problems. Tests showed raised ANA's but little else. I then ended up in a Spanish hospital after visiting a friend there for a couple of days. It was horrendous but at least I now know I'm sun sensitive. deep joy! Long story, short, two hospital stays and a few Rhuemy appointments later I'm on Hydroxychloroquine, steroids, Amitriptyline and Omeprazole and Calceos. My biggest problem, the thing that upsets me most is that my GP doesn't seem to understand. When I tell her about my cognitive problems, she just smiles and says "join the club" or "it happens as we get older" like I'll get used to it. I won't, I hate it. I feel like I'm an intelligent woman masquerading as an idiot. I stutter and get stuck mid sentence. I've now stopped joining in conversations as I make myself look stupid.......and pause.......rant over!
Can I ask? Does anyone on here know about how long these 'flares' last? Because I appear to be in a steady, constant one that doesn't seem to want to go away. It's been seven months now and I'm nearly exactly the same as when I started. I'm lucky in that my employer has been fantastic so far, but it can go on indefinitely.
I look forward to anybody's thoughts.