The hardest aspect of having so many painful and debilitating symptoms that are mostly undiagnosed is the fact that many people, medically trained or not, don't seem to believe I am 'really' ill.. Like I have a choice in this!! Maybe they think I will get fed up of being patronised or living in poverty and I will get up one day, stop feeling sorry for myself and get my life back!!
Unfortunately I have had mental health issues for most of my adult life and that means that highly trained medical staff.. Who should know better.. Feel its OK to bullet point their letters regarding me with the statement..'well known to mental health services'.. I can even imagine the reaction of other hospital staff when they read it.. Or when it appears as a red flag on their PC screens to 'warn' them in advance of my attendance
On the up side though.. I am developing quite a quirky sense of humour with just a hint of sarcasm thrown in for good measure
So please, anyone who gets where I am coming from, share your experiences if only to reassure me that I am not the oddity that many people believe I am x