I haven't been diagnosed yet but am sure I have Lupus. The consultant is reluctant to get a move on and tell me what's wrong with me so I'm not on any medication whatsoever.
Today I popped in on my neighbour who has recently been put on pred and I couldn't believe how her cheeks have ballooned! I know she has to take them, she has no choice. But in the back of my mind I was thinking how I would hate that to happen to me! I know so many of you on here are on a cocktail of drugs, and getting the benefit of it. Having just read another blog about a little girl not wanting to take her tablets, I kinda agree with her!!! I'm the type of person who would put up with a headache rather than take some paracetamol. So I can't see the point of taking lots of pills with horrible side affects when it doesn't seem to make much difference!!!
For instance I read on here about 'side effects' that people are having and they are writing to ask if anyone else has experienced their symptoms when being on a certain type of medication. They think the medication is causing the symptoms. But I sit there reading it, feeling all the same symptoms and I'm not on any medication at all!
This makes me believe that the symptoms are the lupus itself and the medication is not preventing it, so therefore why take the meds?
I suppose I'm just a bit scared really like that little girl, that my life is now going to depend on drugs. What I really want to know the answer to is:
Do I only need the drugs to improve the quality of my life, or by not taking the drugs will my health be compromised?
I would really like some advice so that the next time I go to see the consultant, if he finally agrees to diagnosing and telling me I'm going on x,yand z drugs, I can discuss them with him and make an informed choice about my own destiny! I don't just want to be put on a drug because it's protocol and he's ticking a box.