I believe this may be the last planned question for the research study. As with all of these questions please do feel free to comment on each other's responses as you do for other posts as getting a conversation going about all these issues is also really helpful. For information about the research this is linked to, please go to healthunlocked.com/lupusuk/... or contact MelanieSloan .
We have identified that many people think there is an inequality in care in the following ways;
A) lupus and other connective tissue diseases being less well understood and catered for than other diseases.
B) geographical inequalities of access to specialists and out-of-area referrals refused in some places.
C) some people perceiving they are treated unequally due to their gender or personal characteristics.
D) people feeling that a previous mental health or psychosomatic diagnosis/misdiagnosis on their records influences their care.
E) those who are seronegative or have unclear blood markers feeling they may not be given the same care/treatment options.
If you feel that you have been subject to an inequality listed above (or another not mentioned) and are happy to share your experiences, please comment below.