lupus

[steph1]

Hi has any one got osteoporosis aswell as lupus SLE ? im just getting one thing after the other bit fed up sorry

steph

[Barnclown]

Hi Steph

I just posted my long winded osteoporosis question....then I read your much less long winded question!

Now I remember you posted about this subject not long ago

Am looking forward to reading your replies

Wishing you the best of luck with your treatment

[steph1 in reply to Barnclown]

sorry if ive repeated my question I have trouble remembering things aswell

steph

xx

[chrisj]

osteo arthitis here as well as sle

[tennissenior]

Steph:

With Lupus it carries a lot of other diseases. I also have low hemoglobin, plus Raynaud's syndrome plus MDS plus ITP plus Hypothyroidism. I also get pains in my ribs and sides of my ribs and a rash on my stomach and no energy. I was diagnosed 4 years ago. I am older than most of you - I am 71. Went on a cruise and got really sick one day. Had labs yesterday and platelets are down to 40 and hemoglobin down to 10.9. I am seeing my doctor on Tuesday - in the morning I am having secondary cataracts lasered and seeing him later on. They've tried dexamethisone and it worked for 4 weeks and then back again to the 30's and 40's (platelets). It IS a very depressing disease and most times, I wonder why I am still here. It's not a good life. Things change from one moment to another. A few days ago I started to get tremors. Now what's that??????? Every day I wake up and wonder whats in store for me. I'm truly getting pretty fed up with living this way.

[misty14]

Hi Steph

I too have just been diagnosed with osteoporosis as well as having other things wrong. Sadly for us it comes with our steroid treatment so it's a constant juggle of risk versus benefit!. Are you having treatment for it?. Calcium and or Biophosphenate drugs?. I hope you will feel better about it knowing your not alone on this Forum. Have a look at some of Barnclown's replies, might help. X

[steph1 in reply to misty14]

hi yes im on those treatment have been for nearly two years ,

steph

xx

[misty14 in reply to steph1]

Hi Steph

Are you on steroids trying to keep the dose as low as possible?. I find this is hard too and I was upset to get the osteoporosis diagnosis but over time I've come to terms with it as you will too. A few years ago I felt exactly as you do, overwhelmed at having so much wrong with me, wondering how I was going to function. The good news is you do . Sharing experiences on here is so helpful!. Take CareX

[steph1]

I came of steroids in Jan this year

steph

xx

[Iona467]

Yes,, I have, taking tablets for it now, it explains why my ribs broke after a short fall some years ago. I also have Fibromyalgia and 3 slipped discs.