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Active B12 private testing results

Hi all, I really appreciate your comments and feedback. I will post on the lupus site too as I have a number of AI conditions the symptoms of which I cannot tease apart without help.

Currently I am taking plaquenil for UCTD, I am coeliac and I take 100mcg of thyroxine for being hypothyroid. I have many new and debilitating symptoms such as random pin pricks - even in my eyes and behind my finger and toenails, lightening bolt pains through my feet and up my legs, blurred vision, double type vision (optician says tear film breaking up and now referred me to a consultant).

I also have much more extensive joint pain in my fingers and wrists, rashes on roof of mouth, ulcers and blisters on my hands. Now, after seeing the orthopaedic consultant I need another operation on my shoulder - I am in constant chronic pain, hardly sleep and I am trying to hang on in there as a school teacher; I have dropped down to 3 days but the pace and the pressure are overwhelming.

In the autumn my GP tested my serum vitamin B12 which was 284 (225 - 1100). My GP agreed to my trying a sublingual spray for a few months but it made no difference so I came off it 2 months ago prior to paying privately to have active B12 test, my results are below:

99 pmol/L (25.1 - 165.0) says within normal limits.

Can anyone explain how it was deemed that the first one was low while the second within range?

I am becoming really tired of having to cope with little sleep, constant pain and trying to work too.

Any Comments and insight appreciated.

2 Replies

Hi best buddy,

Sorry can't totally answer your question except to say that different labs use different tests with different reference ranges.

Both of your results are in the " normal range "

Are you attributing all your symptoms to a low B12 ?

When was the last time you saw your Consultant?

Have you had your Vit D checked as it can be chronically low in auto immune diseases and cause joint pain.

It might be worth your while seeking an appt with your Consultant to find out why you are feeling so unwell.


Hi, I am not attributing my symptoms all down to b12 deficiency but being hypothyroid too, the total one would suggest I was nearing deficiency and I am certainly having many symptoms of this.

My vitamin D was borderline deficient last summer and after supplementing I became replete... I still take 2000 iu sublingual per day. I really feel in a mess tho and I am in so much pain and have to psych myself up for more surgery in May.


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