Just rung up to chase the result of my synacthen test. The nurse had told me that she would ring next day if there was any problem, so after two weeks, I've been happily assuming that there was no issue.
My GP now informs me that my results show adrenal insufficiency, presumably caused by long term prednisolone treatment. He is increasing my pred dose, and says that I now need to keep a store of injectable hydrocortisone to hand in case of emergencies. This news - apparently - does not count as anything that either the endocrinology nurse or my GP felt the need to inform me of without my chasing it up.
To add to my fury, this possibility was the VERY FIRST CONCERN I RAISED WITH MY RHEUMY when I began getting my extreme fatigue plus episodes of sweats, nausea, shakes 18 MONTHS AGO. He dismissed my concern, saying there was no chance that I could have developed adrenal insufficiency after just 6 months of pred treatment. I raised the same question again, 6 months later, and he said, "No, you've developed fibromyalgia". It was only after I insisted on an endocrinology referral at our next review, that this result has been confirmed.
I am spitting feathers. Or would be, if I had enough cortisol to do it.
OMG...There It Is...Places Flippin Everything about The System in Question...Am Appalled...you’ve Said It All, Mike..Am Right There With You SPITTING FEATHERS (now am more sufficiently medicated on a maintenance dose of daily 10mg pred i DO have the required Umph) .....GRRRRRRRRR.....AND: Well Done! now you know there’s no question about it: you’re very well informed, self aware + a very clever diagnostician
🌟🌟🌟🌟🌟👏👏👏👏👏
😘🍀😘🍀 coco
Say, Barnclown, are you angry about something? If so, you don't really explain it in the language I can understand. I hope you feel better soon.
😂😂😂😂
Thanks coco. My next step is to pick up and read the full endo report before discussing future treatment options with any of my clinicians. My big problem is that I now have zero trust in them, so I will have to depend on my own judgement both to interpret any symptoms, and to decide on a treatment plan x
Yes, i agree: it’s over to you now! Am still fuming at what they’ve put you through: it’s absolutely shambolic! And i am SO GLAD you’re getting a clearer view of the picture: you’ve had a really really really tough time and i think you’ve been incredibly courageous about all of it. 😘🍀😘
That's kind of you, coco, thanks x