Told that there is no central nervous system involvement - which I am very pleased about (MRI brain scan and lumbar picture came back fine)- so Neurologist referred me back to Rheumatologist - BUT - I saw him today and he has nothing much more to say other than this is Lupus and its good i havent got CNS involvement . He didn't increase or change my meds - Im on Hydroxychloroquine and Losartan for the Raynauds. He is sending me back to Neurologist for Cognitive psychometric type tests - but I didn't really understand how this is going to help my symptoms which to me are sounding like peripheral neuropathy or something like that - but they say they are not. So , is all this numbness, shaking, tremor in my hands and tingling in whole body, numb left side of face and tongue, speech problems, balance problems , memory gone mad - all just normal for Lupus?? He didn't tell me how this will get better
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