Such a shame that it is so hard to get hold of and considering how effective it is, the public are being kept away from it, probably because it is cheap and effective so big pharma would rather keep it quiet. Please sign and share the petition and help promote it further.
Thanks Mary. I've spent a couple of hours researching this and, since I'm now out of options (apart from chemo) treatment-wise, think I would like to give this a go. Will discuss with my Rheumatologist next month and let you know how I get on. x
You will probably hear the answer no... you have to try through the LDN Research Trust, please help push the film and petition.. we are being short changed and so is the NHS.. establishment, big pharma and the medical regulator all helping to keep it out of our reach! MaryF x
Oh don't worry, I'm just going to ask what he thinks and am not expecting a script - although I must say he's usually in favour of me trying different things and will help where he can. Already had a shifty round LDN website and will obtain it privately elsewhere if necessary. Have also forwarded details to a friend with MS.
Thank you please do circulate also for more, MaryF x
Signed and disseminated. Stories like this, suggesting Big Business is happy to see people suffer if it means enhancing their profits make me really, really depressed.
yes the public need to fight back hard....I sign worthy petitions and circulate, it is apathy in any situation which destroys action, thank you for your support. MaryF x
I have been taking LDN for a few years now. It has definitely improved my health and energy levels, and I have not had a Lupus flare since I started taking it. The only drawback is, it keeps me awake the odd night. I buy mine privately as many doctors are not willing to prescribe it. If your doctor won't prescribe it, get in touch with the LDN trust as Mary says. My private prescription cost £18.50 a month. It is delivered by post. Thousands of people in the UK take it for autoimmune diseases. There is also an LDN facebook group.
I will sign your petition Mary. I did sign a petition during the last Labour Government calling for clinical trials for LDN and another one to the EU. Unfortunately they didn't go anywhere as pharmaceuticals are not interested in clinical trials for LDN as it is an old drug. Hopefully though the more we push, the more likely they are to listen.
Totally agree MaryF. I believe it's all about the pharmaceutical company's. It's disgraceful that this happens, this cheaper drug that's been on the go for many years could help alleviate so many symptoms and improve the quality of people's lives. Doctors are also to blame.
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