Any body with serositis with their lupus, like me.

[willowwag]

Is there anyone here that suffers serousitis with their lupus sle, serositis inflamation of the, heart, lungs, abdomen and lining of the abdomen. Not alot of information about on this side of things x

[anbuma]

hi i went to A&E yesterday (hav e lupus symptoms even tho dr denies it)with abdo /chest pain and for 1st time a dr finally gave me an explanation(at a push)said my heart was fine btu woke this morning with the hard swollen stomach so If not OC or cyst could be the stomach lining(will add this to the lsit of q's I want answers to.

[willowwag]

Hi there its a awfull feeling and the pain is awfull, yes get them look as this..i had the pain for 10 years before a training doc in my surgery after seeing my many a&e admissions decided to take on my case for her final year, a few specialist app later and sent to see the right people them boom i was told i had lupus, and serousitis...i have other conditions attatched also, hypermobility, raynards, vasculitus and a abdominal hernia because of it....what is your symptoms...thank you for posting back so good to find someone else who might have it also.

[gazorpf]

When I was diagnosed I had all of that. I had congestive heart failure (pericarditis, pleurisy, pleural effusions), kidney failure, costochondritis, kidney failure, bone marrow failure and cerebritis. Lupus can cause inflammation anywhere and everywhere. From your question it is not clear what information you are seeking. Take your meds faithfully, work with your rheumatologist, manage stress. That's all you can do.

[zebedee01]

Yes I suffer with serositis, its horrible!

[willowwag]

Hi gaz, i was just woundering if anyone else was suffering with the same sort of things...it mainly seems to be information on the net about te joint pain etc that we get but not alot of in depth info on this side of things, gaz did they manage to get you serositis under control..its so difficult my eposodes make me feel like whatever next, i work and im really thinking of trying to claim pip as everyday im struggling to get thro the day x

[willowwag]

Hi zeb, its just terrible ive never felt in so much pain even child birth was easier than this lol! Have you found anything that helps.

[zebedee01 in reply to willowwag]

Well steroids seem to be the only thing that help it to be honest! But I am quite new to all this. It seems every time they reduce my steroids it flares back up! I have been admitted to hospital 3 times within a year And then when they get my steroid dose back up the pain gets better within a few days x

[Eagle41]

I had serositis last year. Long story but lots of problems led my dr to order liver biopsy. That is when it got serious. My body didn't like the "invasion". It went crazy. Within 15 min of the test I started feeling severe (and I mean really severe) pain in my chest and abdomen. I seriously thought I was dying. My husband said I kept saying that and that I was praying out loud. I don't even remember my first two days in hospital. They did lots of tests and found inflammation around lungs,heart, and intestines. Dr says the inflammation only shows if very bad. I also had pleural effusions. My sed rate and crp were very elevated. CRP was almost 300. High doses steroids and ten days later I went home. It has been 8 months. While I am better than the hospital I am still worse than when I went into the hospital. I had no idea serositis could be so bad.