Hello. Just want to get people opions . From the beginning, nearly two years ago. I had a stomach bug, which I just never seemed to recover from, I felt faint, sick , shooting pains up prodomontaly my lower legs and for arms and felt like I'd been hit by a bus , every single part of my body ached. I couldn't get through the day with naps every few hours. And my glands in my throat were so large that they were significantly bulging out of my neck. It's like somebody took my batteries out.
The doctors I tally though it was just a stomach bug, then stressed( I wasn't stressed, only with being so I'll) then vertigo. I was referred to ENT, who in turn referred me to a neurologist. 10 months later!!! I saw the neurologist who said I had migraines and also believed I could have a auto immune disorder. Throughout the waiting, I've developed all sorts of weird and wonderful symptoms. I had rashes that randomly appear on my middle finger back of neck and face. Stomach problems, bouts of diarrhoea and constipation and I bruise like a peach. I have times when my statins dye down alittle, and when they flare up and wipe me out.
I'm now under a rheumatologist at guys hospital, who again was convinced from examining me that it was lupus. I had obvious lace rash on my legs during the examination. My blood pressure was and always has been high for my age, no medication. But results for lupus came back negative. Now waiting for my second appointment on Monday. I've also just been diagnosed with IBS. Did anybody else have negative LUPUS results, but then turned out to be LUPUS?
Or is it ME. I've never felt so bad in my life , if this is ME, there really needs to be some eduction on just how debilitating it can be .
Any thoughts welcome