I got used to not talking to people about it. when my eyes both turned black, I said I was in a car accident because people could process that information faster and easier, than trying to explain some bizarre, unknown disease to them. the reaction others project will not be very helpful all the time, and sometimes most of the time. autoimmunes have to get used to that. the doctors used to think we are making it up, and so do some laymen that hear our stories. they are just too unbelievable. meanwhile, there is about 50% maintenance that you can do for yourself. first of all, Lupus LOVES LOVES LOVES negative feelings. feeds off of it like sharks, so don't give it the opportunity. what I found to be very powerful online were guided meditations aimed at self healing, and positive healing and positive self talk (etc etc etc) there are endless meditations online. rearrange your lifestyle. you may have some stressful 'triggers' that you perpetuate and maybe looking at these things and eliminating them would be good therapy in the long run. im a 25 year vet, spent the first 20 years with natural remedies, but lupus got me in the end when I lived thru 3 tragedies. like I said, lupus loves misery. just get rid of the misery. strict diet I used was the 'eat right for your blood type' diet I found very useful. I still use it even tho I depend on meds now too. pay attention to allergies, these are always ''triggers''. hope this helps, I personally depend on these little tid bits. I got most of my information researching other cases. that's why I love these blogs now. when I first got lupus there were no computers, just libraries. now information is at your fingertips. Lupus is for life, its terminal, so don't try to get rid of it, try to manage it. yoga and light weight strengthening is a MUST! good luck, and good health!