My hubby took me to hospital today, totally unrelated to lupus, I've been told to expect a letter from another specialist to remove my gallbladder. He was a really nice guy and I explained to him that I was being investigated for lupus and he asked me all sorts of questions. He said that I would have pain after the operation but if it should continue longer than he thought it should that he would look after me and not to worry but keep taking the pain killers in the mean time.
A couple of weeks ago I had my first appointment with the rhuematologist and can you believe after months of feeling I'll, do ill somedays I could walk, think or talk straight but he took notes listened and took all the blood tests, which came back normal!
On the way home today, I told my hubby that I needed more pain killers and he offered to take me to take me to the GP to get some more. He glanced at me and said I think we should let the doctor see you. In between me seeing the specialist and driving to the doctors, I had a distinctive redness over my checks and between my brows, my ankles and hands started to ache badly! I remember feeling last week very hot and sweat pouring from me and I felt flu like but it kept coming and going but I didn't feel tired. Today I haven't been able to stop yawning.
The doctor confirmed that it looked like a butterfly rash and my husband told him how I felt, I was feeling shocked at how quickly it came on this time and my mind was just not thinking straight. He took my blood pressure which was high and with having CKD that's not good. My youngest daughter came to live with us last month( my hubby is her step dad) and my eldest came to visit today. They all rallied round and have been great and I feel so fortunate. I haven't been formally diagnosed yet but feel now I have moved area that I have also a very supportive doctor who thinks that I have lupus and is supporting me the best he can. He advised me to keep a diary fort next rhuematologist appointment is in August.
No one wants lupus but if it answers a lot of unanswered questions about my health issues that I've been having for over 5 years and my be a lot longer at least I know what I am dealing with and I will manage it! Sorry for any grammatical or spelling errors, I haven't proof read it and fingers and brain have had enough. Xx