Saw the Rheumatologist on the 14th, agreed that the rash looked like butterfly rash. He I had complied a list of events from when I thought I had my first attack. He listened and wasn't dismissive, he was the ANA test I had in march was quite high.
He decided to put me on hydroxichloroquine 200mg twice a day to see if it gets my symptoms under control. He hasn't said it is lupus, but what he did say was, that if the symptoms calm down we might be getting somewhere with the diagnosis.
Thank God they are now taking note of what I have been trying to get through to them all along, I think it really helped with the symptom events list.
I hope it isn't lupus, but if it is, a least I will know what it is instead of being in limbo.
Thanks for listening xxx