Hard to stay positive

[sally70]

Well it looks like yet another treatment may be failing. I have just had my 3rd chemo infusion. I was told that the CT scan I had a week or so before showed no change . I had hoped that some of the cancer would have at least been reduced but nothing like that. They are going ahead with the rest of the course and doing another scan on the 21st Dec. What can I say. You would think something would work. I have to live for 10 years at least but all of my options are getting used up. What I need right now is a bit of luck and a bit of a backbone. Oh and some hope That is the most vital ingredient. Thanks for listening.

[Hidden]

Sally, it's hard to stay positive isn't it when something else is chucked at you. I'm the same today, had a routine brain scan for drop foot which was thought to be due to compression of spine caused by my osteoporosis but turns out the lung cancer has spread to small area of brain. I'm in total shock, just coming to terms with lung cancer diagnosis and now this! Don't think I can cope. I'm not sleeping, freezing from the shock of it all. There will be other options for you, and positive ones, and yes we have hope and yes luck. Thinking of you Sally and let us know how you get on. Sending love and best wishes. Pam xxx 🥰

[sally70 in reply to Hidden]

Hello Pam, Thank you for responding so swiftly to my message and my apologies for not replying before. I been rather down in the mouth but reading the responses to my moans really helps. I'm hoping that the shock of finding your cancer has spread to the brain has eased a little and that the team looking after you have now discussed treatment. All we can do is keep putting one foot in front of the other as we deal with each new development. We just need to keep going. Wishing you some positive news and a good 2022. Elizabeth xx

[sally70 in reply to Hidden]

Hello again Pam, Just wanted to say I hope you don't think I'm making light of you finding the cancer has spread to the brain. I know how I would respond. But when you read some of the messages on this and other sites you know it can and will be treated. You wish it wasn't there but now it has been identified it can be treated. I will be thinking of you. Elizabeth xx

[DBdibble]

Hi Sally, I'm not going through this, however my wife is and we both cling onto whatever information we can get from the scans, yours sounds similar, we went through the disappointment that there was no reduction in the size of the tumour, however two weeks on we started to review things a bit by bit, Corrine was in no pain, she seemed to be coping better with sickness, was starting to eat again albeit only enough to stop losing weight, then our mind sets changed to accept the fact that the cancer wasn't for the first time getting bigger and we were at last getting some wins which for a stage 4 diagnosis is good news. Keep fighting the fight girl you aren't alone we are all in your corner David Xxx

[sally70 in reply to DBdibble]

Dear David, Thank you so much for replying to my message and my apologies for not responding to you before now. I managed to get myself into a bit of a slump but coming back to this site and rereading these messages really helps. So thank you for taking the time and trouble to respond. On Tuesday I have a CT scan so I should get some idea of what's happening after that. They have already sent me another appointment for blood tests and maintenance chemo but I expect this will depend on what they find on the scan. I long to get the sort of result to treatment that some people have. A move into remission for many years to come. One day. But until then thank you again and my very best wishes to you and your wife. May 2022 bring us both some exceptional good news. Elizabeth xx

[Hidden]

Hello Sally. You don’t need to apologise, it’s so very hard carrying on. I’m attempting to put Christmas decorations up and wrap some present’s, I’m afraid my hearts not in it, normally love Christmas, but that’s all changed now. Yes, I’d come to terms with lung cancer but not the brain cancer. It’s all been terribly frightening really, the mask fitting at Salford Royal was so scary, fitted on my face and then attached to MR scan, I got quite claustrophobic. Like David says we are all in your corner. Sending all my love to you, stay strong.

[sally70 in reply to Hidden]

Hello again Pam, Yes Christmas is just not the usual celebration. We usually join the family for Christmas day but the group includes children and young people of all ages so this year with the threat of Covid we will be joining them via computer. I do hope you manage to have some joy at Christmas. Take care Elizabeth xx

[Hidden]

Yes Covid too to contend with! As though we've not got enough. You take care and chat soon. Like Pam xxxx