The primary cancer has been eradicated, however 3 enlarged lymph nodes have now been found on the scan. This could be due to a cheat infection or it could be cancer. The scan is now being reviewed by a panel of experts.
Anyone have any advice on this?
Hi Sandra. I have small cell lung cancer that was eradicated, Now it has spread to my bone, specifically hip bone with a secondary in my lymph nodes in my tonsils.
I hope it's not cancer for you. I don't know what to do at this point either except to give it to my creator and let him bring me through it, I wish you the best though in your diagnosis.
yes now waiting for scan appointment for the analysis! It’s the waiting that is upsetting
Hopefully the second analysis of the scan by chest people as opposed to oncologists will be good news, I had a very bad chest infection for a while before the scan. Good luck to you.
And to you 🤞for you x
I had a CT scan in November and that report was a 11mm nodule just above the lung which was all clear on my last scan in August. Because there unsure of the nodule I’m now waiting for a PET scan for further analysis I’m still in a lot of pain around the lung area so hopefully I’ll get the scan quickly.
well done on the primary being eradicated. lymph nodes can often become enlarged with infection so often will result in another scan/imaging in a few weeks' time to see if any change so living with the waiting game is almost inevitable.
I usually find distraction the best technique for me at such times - keeping busy or engrossing myself in some task where I don't have time to keep thinking...
images are usually read by at least 2 thoracic readers rather than a panel - and in some instances AI is being used to supplement the 'human' readers. hope you get some answers soon.... not everything that shows on an image as 'suspicious' is necessarily 'sinister'.... good luck.
I will have an answer to the MDT/panel on the 9th of January and almost certainly another scan also in January. The enlarged nodes were not seen in scans between March and September nor on any of the scans during Stereotatic Radiotherapy in October. So anything there is fairly recent and I had a bad infection so the hope is it's that.
Ref distraction I have many creative hobbies and others that I wish to try and as not at work can just explore and experiment without work getting in the way. 
They are jumping straight to a biopsy this week so I'm guessing they are concerned, couldn't pin the oncologist down to numbers. He has made an appointment for a week after the results are due, possibly so he can come up with a plan for treatment if it is cancer again.
it's natural to jump to conclusions but if they can't determine what's going on, there is usually a number of processes they follow as much to eliminate causes as rule them in so I'd hold off jumping to any conclusions about concerns just yet. many of us think if something takes a long time, that's bad news, others think if things happen quickly, that's bad news - but it can all vary dependent on resources available in any given hospital at any given time as well as a well documented investigative pathway if they're unsure. hang on in there. take care
In December he told me it would be another scan and then maybe a biopsy after a second review, as this plan has changed after the MDT I think it's more than fair to assume they have concerns. I feel positive about this, they are not wasting time, money and energy on another scan but going for a definitive test. This is good news, and whilst a diagnosis of cancer is not nice it is not necessarily a death sentence either. It is treatable and can likely be eradicated, this is my third time with cancer, I can win again.
Great approach to it . diagnostic tests come in a range of types - sometimes blood tests, sometimes imaging, sometimes biopsies and often a mix of them and at different times to balance risks/potential harm/likelihood etc. good luck and let us know how you get on.
will keep fingers crossed for good results and next scan. sometimes infections can inflame lymph nodes that show up on scans so let's hope it's that.
well done on having lots of creative hobbies - maybe set yourself a challenge to do - I found it quite motivating to set a target to swim for example to raise money for Roy Castle lung cancer foundation which I did for several years - as it felt more purposeful with a goal in mind than only improving my own lung health/fitness (which was a good goal in itself). thinking of you.
I have a target to run the Race for Life in June next year, physios don't think I'll do it and are actively discouraging me, I don't think I will be able to run 3 k by then; especially f I have to have chemo/radiotherapy. But I will be able to walk/run/jog it.
Hi SandraLlew
Sorry to hear of your anxiety in the wait for your scan results, this is understandably a worrying time for you, but as JanetteR57 has said, infection can certainly show up on scans with the lymph nodes being enlarged, especially as you mentioned that you had had a chest infection.
Distraction is a good way of managing the waiting as time can seem to draw on for quite long. Our nurse helpline is open today if you want to chat on 0800 358 7200 0900-1700, alternatively you can email us at lungcancerhelp@roycastle.org
We offer online support groups through zoom or one to one support and you can view and register for these through this link:roycastle.org/help-and-supp... or you could email our support coordinator Ellen Knapp at ellen.knapp@roycastle.org
Thank you for your interest in our race for life to help support the foundation.
Wishing you all the very best and hope the New Year brings better days for you
Ask the nurse
The Roy Castle Support Team
Thank you for this information, I am doing a lot of experimental crafting that is keeping me occupied.
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