Well firstly i cant believe i am here but also very grateful to find this site. Its unbelievable how quickly your life can turn upside down in moments.
I also want to say keep going to everyone out there, its a horrible place to be and i feel for anyone gong through this.
My darling Mum has diagnosed with stage 4 cancer with leptomeningeal Mets. i google way to much and am devastated. However, after a lot of reading i am focusing on the success and survivor stories and the statistics for longer term survival.
A little background - Mum did not have any symptoms really - she had a little numbness in her leg which she went to the doctors about but apart from that was in great health - all still is. The only symptom was some slurred speech on the phone to me so i insisted she went to hospital - from there our world unravelled.
In 2 months there has not been any deterioration, which is a real plus. She starts chemo a week today with a combination of cisplatin and pemetrexed. Our focus has been to keep her positive (she really is, actually amazingly so) and keeping her fit and healthy. I moved her to a very healthy diet for cancer fighting foods ensuring its balanced and nutritious (i bought her scales so she can maintain weight) she is also juicing twice a day. she also supplementing with Curcumin, red grape seed extract, milk thistle, aloe vera, selenium, black seed oil, moringa powder and echinea. shes also shoting raw garlic and drinking 2 litres of water a day. exercise daily of a 40 minute swim or jog. She is maintaining excellent health and is determined to fight the whole way. She declined prognosis, we talked about it and decided she didn't need to hear life expectancy, we figured it was a guess at best and would dent the absolute positivity she has that she will survive years and years which is possible.
My personal aim has been to lengthen her odds as much as possible, research what helps, can help or might help and chuck everything at it. research what complications can arise and work out how to reduce them. Called out to friends and family which we are lucky to have for support and encouragement and learn as much about the disease as possible. Got her on cannabis oil as well which she is enjoying a little too much
My next task is to make sure she is getting the right treatment at the right time. i believe oncologists do the best they think but i don't believe its always for the best. I would hate my Mum to miss out on some real life saving treatment cause she has a stuck in the mud oncologist who plays it too safe or because a lack of equipment etc...
I hope your not to bored of the post and read to here...
The first treatment is chemo, does this sound right to everyone? he did mention radiation but not until he knows how the chemo is going to pan out. Im very worried about the brain thing, it has a devastating prognosis however, Mum does seem to have lived with it for months without it causing her any real issues and no real deterioration.
Im also curious on peoples ideas around supplements with chemo as well?
Thanks for reading and thank you for taking the time to reply of you do. i adore my Mum and cant imagine this world without her.