My husband has been on crizotinib, Ap26113, chemo and finally Opdivo which left him deathly sick, Even though his genes were just sequenced at Mass General in Boston and told he needs Lorlatinib, the trials are closed until the fall and he can apply for compassionate care slots at that time. Once you are on Opdivo, you can only get into the trial this way. In the meantime he is failing and will not make it to the fall. Isn't there any compassionate care program for this drug?
Lorlatinib for ALK rearrangement - The Roy Castle Lu...
Lorlatinib for ALK rearrangement
![ndrew68 profile image](https://images.hu-production.be/avatars/27fbbead1f291333f83bad1f31359fe3_small@2x_100x100.jpg)
Written by
![ndrew68 profile image](https://images.hu-production.be/avatars/27fbbead1f291333f83bad1f31359fe3_small@2x_100x100.jpg)
ndrew68
To view profiles and participate in discussions please or .
Read more about...
3 Replies
•
I suggest you contact the developer directly and/or ask your oncology team to do so. Pfizer is it? Are there other trials you can ask about?
Dr. Camidge at University of Colorado told me last week that the Lorlatinib trial has just reopened for enrollment. If Mass Gen does not have available slots, other locations might. Best hopes for good treatment results.
Not what you're looking for?
You may also like...
positive stories stage 3b/4?
Hi,
My partner was diagnosed with stage 3b NSCLC last July. So far he is doing well, now on...
honeyyorkie
I coughed up a little blood last august and thinking that I could possibly have an eneurism, I was...
Treatment plan day for me today at 10am. Wish me luck I'm so so scared 🙏🤞
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted...
Scared Newbie
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted...
trying to stay strong
hi everyone, my mother in law was recently diagnosed with lung cancer, she’s 87. Within a few weeks...