Do you care for someone with lung can... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Do you care for someone with lung cancer?

ConnectRoyCastle profile image
ConnectRoyCastleAdministratorRoy Castle
5 Replies

Our lung cancer carers group starts next Friday the 28th of April. If you care for someone with lung cancer and would like to connect with others who do the same then this group is for you.

We know that time is precious when you are commited to looking after others, the group will run fortnightly at 10 am on Fridays. A little time spent on connecting with other people in a similar situation, recieveing and offering support may be the thing you need.

If you are interested in this group please get in touch..

lungcancerconnect@roycastle.org

0333 323 7200 - (option 2)

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ConnectRoyCastle
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5 Replies
JanetteR57 profile image
JanetteR57

Such an important group.

It's not weak to accept that help from strangers going through the same thing can be a real tonic to one another and important to make some time for you.

Years ago I was privileged to hear Jon Suchet speak at a nursing conference about his experience with his wife Bonnie and her alzheimers - he'd not long had to accept she needed to be in residential care. He spoke with such tenderness but also anger - and explained about Admiral nurses who support the relative(carer) trying to support the person with dementia.

Jon had explained that he was a man, an important newsreader and wouldn't possibly need any support as he had things under control. The male Admiral nurse who contacted him said 'one day you will..... you will get angry, frustrated, sad, and depressed as your world changes as well and when the time is right, we're here for you'. He said he found immense support from his admiral nurse when he did connect.

Having tried to persuade my dad that the same service he'd been offered was for him and his needs, yet rejected out of hand but during the pandemic accepting he needed somebody to talk to, it was arranged. After only a couple of sessions he cancelled the phone appointments when she was at the hairdressers, saying he felt he was betraying her as she couldn't help her illness. His comments broke my heart - it is his immense fortitude over the years that has ensured she is still in their own home.

Too often carers don't see themselves as that - feel they have to stoic, bear it all alone and seldom consider their own needs. The isolation, fears, anxiety and often unexpected diagnosis of lung cancer can all take their toll on loved ones. Hopefully this group can help support others in the ups and downs of lung cancer investigations, diagnosis, treatment and beyond just by sharing experiences and being there.

ConnectRoyCastle profile image
ConnectRoyCastleAdministratorRoy Castle in reply toJanetteR57

Thanks so much for this comment Janette. Very well put.

Clareoh profile image
Clareoh

hi I’d like to join if you can send me a link.. I’ll try to get online for it thanks

ConnectRoyCastle profile image
ConnectRoyCastleAdministratorRoy Castle in reply toClareoh

Sure thing Clare.

Holepunch profile image
Holepunch

I would like to join carers group please

Thank you

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