After two surgeries, chemotherapy and radiotherapy, I developed truncal and breast lymphedema ( hand and upper arm as well but they do not bother me as much, funny enough ). The problem with my breast is that following a large hematoma from the first surgery there is lots of fat necrosis that turned into radiation fibrosis/scar tissue after my rads. Now I have a really hard and painful breast and occasionally, my mondor's disease under my breast gives me recurrent cancer scares ( it feels like pain in the bone although it is just a lymphatic cord like AWS cording ). No professional seems to be able to help ( some mention liposuction, my first surgeon thinks the only way is a mastectomy ), has anyone tried the pentoxifylline-vitamin E combination to rid of radiation fibrosis?
I saw Dr Ramsey for LVA but he thinks that the breast needs to "sorted" of all this mess before anything can be done. I wear a compression vest by Bellisse, the only one I found not annoying me although I can go braless now that my breast is so hard ( but it gets more swollen if I do )! I also use Hivamat massage which helps a lot but, I have to have it at least 3 times a month. I am only 51 with two young kids, this is driving me insane ( constant pain ), I cannot imagine in our age and stage that nothing can be done... Forgot to say, there is also constant pain from my severed iintercostobrachial nerve, that is sort of "sorted" by lidocane patches.