I stumbled across this forum, in search of some answers.
I am a 45 year old male dealing with PL since I was about 15 or so. When I was diagnosed I was never offered solutions, only a diagnosis. Then at about age 27 -28 I found out about MLD and it worked wonders, yet was still not aware of compression garments.
Around 10-11 years ago I found out about compression garments, after a snowmobile roll over and my hand near exploded with fluid build up.
Both feet have always been affected, since age 15/16 and my right hand since age 30 I suspect.
The last couple of years, it has gotten worst during the summer months and I have just recently put together what is happening.
2 springs ago, I was finishing a big renovation ( I am a contractor) and when I was done.... Well I was done literally. My body was a wreck. Too many energy drinks, I assumed as I seemed to have really crashed.
Well after a few days I was still really lethargic, and after a few weeks I finally spoke to my wife thinking I was suffering from some form of depression. Work was on hold as I could not even get out of bed. I would get up in the morning,sort out our kids and them climb back into bed.
Saw my GP and of course they relied on the info I provided and put me on anti- depressants. Sort of worked but not really. Still hit and miss. Could work for a couple of days physically then be wiped out for 2 days. Hmmm ok back to blood work. Oh my testosterone levels are down. Ok try that.
So winter comes all is betterish. Carry-on.
This year same thing, then finally this week I think I have sorted out the problem.
I believe, I am now have the lymph fluid backing up in my stomach or intestines.
When I crash, as I call it, I have ridiculous bouts of diahrrea for a couple of days. Completely fatigued and constantly on the toilet. These crashes happen after a huge physical exertion for a day or 2.
Heading to the GP today and I hope I can get some answers or at least pointed in the right direction.
Any other folks have similar findings?
Thanks for taking time to read my post.