Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE

1,277 members • 802 posts

All posts for March 2020

Chronic lymphocytic leaukimia

I was diagnosed with cll 9 years ago . At the time it was scary but waded through it too where I am now . I haven’t thought about my cll for months at a time...

I was diagnosed with cll 9 years ago . At the time it was scary but waded throu...

•4 years ago

Register yourselves as vulnerable people

Hi all If you haven't already, please register yourselves here https://www.gov.uk/coronavirus-extremely-vulnerable Blood cancer patients have been advised to...

Hi all If you haven't already, please register yourselves here https://www.gov.u...

NicoleLeukaemiaCare

Administrator•4 years ago

MDS

My Husband has MDS And now waiting for appointment for colonoscopy. In the next 2 weeks fir a growth. We haven’t received a letter saying. He is hi risk...

My Husband has MDS And now waiting for appointment for colonoscopy. In the ne...

•4 years ago

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Home deliveries

If you have received the official letter or text informing you that you are high risk you can go to government site at gov.uk and register for home delivery....

If you have received the official letter or text informing you that you are hig...

Champion•4 years ago

The pros and cons of social media use and living with your diagnosis?

Our latest Leukaemia Chatters podcast is now live! Interesting we recorded this before the COVID-19 outbreak that has changed how we live together at the...

Our latest Leukaemia Chatters podcast is now live! Interesting we recorded this...

Administrator•4 years ago

Great financial advice from MoneySavingExpert

Martin Lewis of MSE has issued his weekly newsletter and it's full of great financial advice...

Martin Lewis of MSE has issued his weekly newsletter and it's full of great fina...

NicoleLeukaemiaCare

Administrator•4 years ago

Self-isolation/shielding for people with blood cancers – FAQs

The government have now issued full advice for all people considered at extra high risk of severe disease if they contract coronaviruses. Leukaemia Care have...

The government have now issued full advice for all people considered at extra hi...

Administrator•4 years ago

Not leaving the house- not even the garden?

Not going into your own garden or walking in an isolated area?? Can anybody clarify what they are doing with regards to getting some fresh air? The NHS message...

Not going into your own garden or walking in an isolated area?? Can anybody clar...

•4 years ago

Special Thanks

To everyone at Leukaemia Care, can I thank you for your continuing efforts on our behalf. Look forward to seeing you again, after the Covid19 crisis is over,...

To everyone at Leukaemia Care, can I thank you for your continuing efforts on ou...

•4 years ago

COVID-19 support- Leukaemia Care

LC is still open for business during this uncertain time. Staff are working from home and we are working around the clock currently to get the latest...

LC is still open for business during this uncertain time. Staff are working from...

NicoleLeukaemiaCare

Administrator•4 years ago

Ready, Steady... Cook!

I thought, while we might be struggling with limited food choices given the availability of things in the supermarkets, it might be useful, and fun, for people...

I thought, while we might be struggling with limited food choices given the avai...

Administrator•4 years ago

Confused /scared about Covid 19

Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking...

Hi there I’m guessing that a lot of people are in the same boat about Covid19. M...

•4 years ago

Coronavirus and returning back to work

I have Hairy Cell Leukaemia and have been recovering from chemotherapy treatment since 18th January. Apart from the fatigue i’ve been contemplating returning...

I have Hairy Cell Leukaemia and have been recovering from chemotherapy treatment...

•4 years ago

Isolate or distance?

Hi, I'm a CLL patient – diagnosed 6 years ago and on watch and wait ever since. I'm 52 and have two kids at primary school. I'm holed up in the spare room (I...

Hi, I'm a CLL patient – diagnosed 6 years ago and on watch and wait ever since. ...

•4 years ago

Cold feet, burning sensation

Just wondering if anyone is suffering from the feeling of feet being cold but warm to touch and sometime a burning sensation in them? I finished chemo in...

Just wondering if anyone is suffering from the feeling of feet being cold but wa...

•4 years ago

Coronavirus

Coronavirus Hi, I have A M L and after my last cycle of chemotherapy, I was unwell with a high temperature and rang 111 at 11 pm. I was taken to hospital A & E...

Coronavirus Hi, I have A M L and after my last cycle of chemotherapy, I was unwe...

•4 years ago

Immune system + coronovirus advice

I’ve just heard on TV a medical expert saying that those who are on chemo should take extra precautions re coronovirus, and self isolate. I’m on...

I’ve just heard on TV a medical expert saying that those who are on chemo should...

•4 years ago

CMMLLand Systemic Mastocytosis

I have recently been diagnosed with CMML1 and if that wasn't enough, Systemic Mastocytosis. Has anyone out there been diagnosed with same as I would like to...

I have recently been diagnosed with CMML1 and if that wasn't enough, Systemic Ma...

•4 years ago

Could anyone share their thoughts on the use of Imbruvica (ibrutinib)?

what have your experiences been with using Imbruvica (ibrutinib)? side effects? lifestyle changes?

what have your experiences been with using Imbruvica (ibrutinib)? side effects? ...

•4 years ago