Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE

1,277 members • 802 posts

All posts for April 2018

My own Watch Wait and Worry CLL story

Thanks so much to Leukaemia Care for the fantastic watch and wait campaign, highlighting how difficult it is for us to adjust to. We are told we have cancer...

Thanks so much to Leukaemia Care for the fantastic watch and wait campaign, high...

•6 years ago

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#WatchWaitWorry - our latest campaign

Hi all, This week our campaigns team have launched our #WatchWaitWorry campaign at the British Society of Haematology which is being in Liverpool this week....

Hi all, This week our campaigns team have launched our #WatchWaitWorry campaign ...

NicoleLeukaemiaCare

Administrator•6 years ago

Hello

It's Friday night and at 27 I would normally be out with my friends but instead I am enjoying it at home after being in isolation for 5 weeks. I wanted to see...

It's Friday night and at 27 I would normally be out with my friends but instead ...

•6 years ago

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CLLSA/Leukaemia Care UK buddy scheme now live - Do you want to connect with someone who has experience living with CLL?

If you live in the UK and have been diagnosed with CLL or are a carer (family member) you can now get support by talking with a CLL buddy. The 12 month pilot...

If you live in the UK and have been diagnosed with CLL or are a carer (family me...

Administrator•6 years ago

How do you know that you are in remission?

Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent skin gvhd which left...

Hi, I had a stem cell transplant in feb 2016 which has been successful although...

•6 years ago

Ten days to watch, wait, worry? Campaign launch

A week on Monday, Please join our Watch Wait Worry campaign and help us to improve the support offered to patients on Watch and Wait. We want to see more...

A week on Monday, Please join our Watch Wait Worry campaign and help us to impro...

Administrator•6 years ago

Persistent infections and always unwell

Hi I have been struggling with persistent infections for 3 months and am due for my hospital monitoring visit in three weeks. It has been over a year since...

Hi I have been struggling with persistent infections for 3 months and am due for...

•6 years ago