Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE

1,276 members • 802 posts

All posts for November 2016

JMML

Hi, not sure what to say, I have a 9 month old with jmml diagnosed at 4 months. her option for treatment seem very limited bmt (bone marrow transplant) being...

Hi, not sure what to say, I have a 9 month old with jmml diagnosed at 4 months....

•7 years ago

What information would you like to see?

Here at Leukaemia CARE we are always reviewing our patient information to ensure that our booklets are written with patient need in mind. You can view our...

Here at Leukaemia CARE we are always reviewing our patient information to ensure...

NicoleLeukaemiaCare

Administrator•7 years ago

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Acute myeloid leukaemia

Hi my name is Donna in December 2013 I went into hospital with what I thought then was tonsillitis only to be told the next morning i had cancer and they had...

Hi my name is Donna in December 2013 I went into hospital with what I thought th...

•7 years ago

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Intro

Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient...

Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b ...

•7 years ago

Essential thrombocythemia

Hi I was diagnosed in 2011 I'm JAK 2 positive & I'm aged 44 years

Hi I was diagnosed in 2011 I'm JAK 2 positive & I'm aged 44 years

•7 years ago

Ccl confusion

I have been on watch and wait since 2011 and my new consultant has not decided about starting chemo even though I have no stage B symptoms and numbers are...

I have been on watch and wait since 2011 and my new consultant has not decided a...

•7 years ago

1st Time

Hello, I was diagnosed with PRV/ET just over a year ago and am on a daily dose of Hydroxycarbamide. I would like to know how others are getting on.

Hello, I was diagnosed with PRV/ET just over a year ago and am on a daily dose...

•7 years ago

Myeloprolifative Neoplasms - Has Anyone Else Got One?

Hi 😊 I'm Karen aged 50. I was diagnosed with Essential Thrombocythemia in 2009 its pretty rare so it is difficult to find anyone who has it to chat to 😞 -...

Hi 😊 I'm Karen aged 50. I was diagnosed with Essential Thrombocythemia in 2009 ...

•7 years ago

Wednesday 16th November

Our forum won't be monitored by the LC team on Wednesday 16th November. Our care line will be open as usual and has a nurse service from 7.30-10.30 on a...

Our forum won't be monitored by the LC team on Wednesday 16th November. Our care...

NicoleLeukaemiaCare

Administrator•7 years ago

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ET Sufferer

My first post here, so "Hi" to everyone. I was diagnosed with Essential Thrombocythaemia 6 years ago. I continue to be treated with daily Hydroxycarbamide. I...

My first post here, so "Hi" to everyone. I was diagnosed with Essential Thromboc...

•7 years ago

Early diagnosis of Leukaemia / blood cancers

Please visit our GP training tools for information about early diagnosis of blood cancers. This will help you in your daily work on the haematology ward....

Please visit our GP training tools for information about early diagnosis of bloo...

LeukaemiaCARE Nurse•7 years ago

hcl

hi everyone , i am new today Monday 14/11/16 and i would like to talk to people who like me suffer with HCL hairy cell leukaemia ,very rare 0.3 in 100 000, i...

hi everyone , i am new today Monday 14/11/16 and i would like to talk to people ...

•7 years ago

Hello

Hi, I am nearly 72 and was diagnosed last year as having got "T" Cell CLL, this was quite a shock to the system as you may imagine, I have been in remission...

Hi, I am nearly 72 and was diagnosed last year as having got "T" Cell CLL, this ...

•7 years ago

Hello my name is Anisah

Hi I'm new to the site I have apml

Hi I'm new to the site I have apml

•7 years ago

Generic Imatinib

Our Campaigns and Advocacy have written a news article about generic imatinib which is a particular concern for CML patients. You can find this article on our...

Our Campaigns and Advocacy have written a news article about generic imatinib wh...

NicoleLeukaemiaCare

Administrator•7 years ago

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