Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE

1,276 members • 802 posts

All posts for June 2019

Questions about bone marrow biopsy (having my second one Tuesday 😰) and MDS

Hi, I am getting my second bone marrow biopsy in less than a year on Tuesday 😥 because I have had low white blood cells since last fall, and as of Monday they...

Hi, I am getting my second bone marrow biopsy in less than a year on Tuesday 😥 ...

•5 years ago

Thank you

I was diagnosed with cll in 2012! Began Imbruvica five weeks ago with little side effects so far and wbc from 226 to 27 and Rbc up closer I look forward to...

I was diagnosed with cll in 2012! Began Imbruvica five weeks ago with little si...

•5 years ago

Out of my depth

Not sure if the right forum or group , short story had raised wbc now of around 12-14 for around 8 years . Doctors are only now testing through Hematology who...

Not sure if the right forum or group , short story had raised wbc now of around ...

•5 years ago

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Patient to help us with a drug appraisal for NICE - can you help?

Hi everyone! Leukaemia Care are currently working with NICE as they decide whether to fund the use of gilteritinib (brand name Xospata) on the NHS. This is a...

Hi everyone! Leukaemia Care are currently working with NICE as they decide wheth...

KnitEatCrochetRepeat

Patient Advocate•5 years ago

The Summer edition of Leukaemia Matters is now on its way to doorsteps and inboxes!

Welcome to the Summer issue of our magazine! Read more about the activities of Leukaemia Care and patients over the past months and plans...

Welcome to the Summer issue of our magazine! Read more about the activities of...

Administrator•5 years ago

Elective hip replacement for osteoarthritis in severe CLL - any advice?

I'm new here. Does anyone have experience of hip replacement surgery for osteoarthritis in severe CLL. Is it safe to have the hip replacement surgery and then...

I'm new here. Does anyone have experience of hip replacement surgery for osteoar...

•5 years ago

Dads rash

Dads got AML. He declined treatment back in August last year. Still going strong . No pain and regular blood tests . He has a rash that’s driving him mad. It’s...

Dads got AML. He declined treatment back in August last year. Still going strong...

•5 years ago

Bmb

Hi guys....if any of you have had a BMB how long do you wait for results? I'm seeing my heamatologist next Monday...nearly 3 weeks after having it. He said he...

Hi guys....if any of you have had a BMB how long do you wait for results? I'm se...

•5 years ago

CLL patient input: New booklet - Richter's Syndrome/Transformation

Hi all, We're currently scoping out a project in which we will write patient information on a topic which is frequently discussed by CLL patients online -...

Hi all, We're currently scoping out a project in which we will write patient inf...

NicoleLeukaemiaCare

Administrator•5 years ago

Lymphoblastic lukaemia

My mum died after a 2 hr battle with lymphoblastic leukaemia yesterday she grew her wings and died peacefully

My mum died after a 2 hr battle with lymphoblastic leukaemia yesterday she grew ...

•5 years ago