suzyredsox8 days ago
my boyfriend has CLL. he was diagnosed a year ago. we would like to join a support group but there are only two meeting this year in our a...
4 Replies1 Like
boyfriend has CLL
my boyfriend has CLL. he is 57 years old and has had it for a year now. we would like to join a support group but there are only two meeti...
T Cell treatment
Marilyn195916 days ago
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission follo...
W/b count 100,000
littledab17 days ago
Hi everyone, blood work back, i went up from 69,000 to 100,000 in 3 months!! Feeling down, but trying to stay positive!! I will not let blo...
My dads AML at 81 years
Meeawwwwa month ago
My dad of 81 years old has been diagnosed with AML and given 6 months to live. He is a very fit man and has no immediate symptoms. His Bond ...
NHSE publish positive review outcome for Ibrutinib use in relapsed CLL
HAIRBEAR_UKa month ago
Hi all, I have pasted below the Leukaemia Care response to today's good news, following the work of Leukaemia Care, CLLSA, The UK CLL Forum ...
2 Replies4 Likes
Marilyn1959a month ago
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very...
Saturday 8th September, Malvern 'Spot Leukaemia', fun dog show, picnic and dog walk
If you are in the Midlands come and join us in the first week of Blood Cancer Awareness Month for a fun day out to help raise awareness abou...
1 Reply2 Likes
Topteam2 months ago
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
13 Replies2 Likes
Islay552 months ago
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant whi...
1 Reply1 Like
59 year old female
Lovinglife112 months ago
Diagnosed with ALL in 2011, really had a tough time for a few years but now enjoying life and loving my family. My health is generally good ...
15 Replies5 Likes
Recall on frozen veg
NicoleLeukaemiaCare3 months ago
Just thought i'd flag this - for anybody who is immune compromised, it is probably worth checking out t...
4 Replies2 Likes
emmieb-UK3 months ago
Hi - I've just been to see the GP about HRT (I'm 50 and having a troublesome time with perimenopause). She checked her medicine book and the...
New toolkit available: Genomic testing in CLL. What would you like to see next?
We launched our latest toolkit on Friday on genomic testing in CLL.
Our know your rights toolkits cover...
Be the first to reply1 Like
Advocacy caseworker now available
Good morning from a very sunny Worcester.
A little update from Leukaemia Care - we now have an advocacy case worker within the office.
2 Replies5 Likes
CLL: FLAIR Trial site list and update to design
AdrianUK3 months ago
In response to an email, I received the following reply from the organisers of FLAIR with permission to share this in the online patient for...
Hevs3333 months agoPOPULAR
Hi my name is Heather and I have just joined the group I have cll was diagnosed in 2007 and still on watch and wait. Would be nice to catch...
27 Replies1 Like
Breakthrough therapy saves Mike's life - reports of innovative precision medicines for cancers from ASCO in Daily Mail
HAIRBEAR_UK3 months ago
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon.
The 34-year-old from Bristol wa...
1 Reply3 Likes
Acute Lymphoblastic Leukaemia – a wife’s perspective
For Carers Week, Lisa Goodall shares her experience of caring for her husband following his diagnosis of ALL. In this first blog, she recoun...
NEWS - Scottish Medicines Consortium (SMC) recommend the use of midostaurin for adult acute leukaemia
Scotland receives a positive recommendation by the SMC for the use of FLT3-mutation-positive targeted therapy midostaurin in first-line AML ...
Be the first to reply
NEWS - Scottish Medicines Consortium (SMC) recommended the use of inotuzumab ozogamicin
The Scottish Medicines Consortium (SMC) issues restricted recommendation for use of inotuzumab ozogamicin in the treatment of adults with re...
Kleighton4 months ago
This I my first post. I was diagnosed with Myeloma in September 2008. Since then I have two stem cell transplants and for the third re-o...
4 Replies4 Likes
Cardiff Innovation and Impact Awards 2018, Cancer prognostic testing innovation is nominated as finalist, your vote counts.
HAIRBEAR_UK4 months ago
The diagnostic telomere testing tool developed by Profs: Fegan, Baird and Pepper at Cardiff University has been selected as a finalist in th...
Our new Living well series
NicoleLeukaemiaCare4 months ago
This week we officially launched our latest booklet, Living well with AML. It can be downloaded on the Leukaemia Care website and you...
5 Replies2 Likes
Meic134 months ago
what was your initial reaction to the word CHRONIC in the diagnosis?
mikec114 months ago
Is this the right group for someone with Chronic Lymphocytic Leukemia?
7 Replies1 Like
DrunkJam_UK4 months ago
Booking is currently open for the course in Chester. They are on Twitter too.
They run courses all over the co...
Sunday. Homework Day
One of Miss M's homework tasks this week was to make a wedding cake.
(no, seriously, it was.)
So, she and I made this one tier version of our ...
3 Replies1 Like
Hump Day Highlights
So here we are at hump-day. Which means, it's down hill to then weekend from here!
How's it going this week everyone?
My knee is not getting...
7 Replies2 Likes
Lazy Sunday Afternoon
We are just having 5 minutes in the garden waiting for DS to get back from Scout Camp. Having mowed the lawn, and planned the dinner, I thou...
Start a Community