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Leukaemia CARE

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Last Call - Places available for today's UK CLL treatments update webinar

Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequ...
HAIRBEAR_UKAdministrator

Register for a UK CLL treatment update webinar for patients as NICE publish latest Guidance.

Today NICE has released Final Guidance for acalabritinib access in England and W...
HAIRBEAR_UKAdministrator

Partner newly diagnosed with TPLL.

Hello new here. Is anyone receiving treatment for TPLL? My partner was diagnose...
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Muscle cramps as a side effect of Venetoclax

I am taking venetoclax at present and am suffering with muscle cramps, particula...

Leukaemia Care and Lymphoma Action - CLL treatment update webinars – 26th April and 5th May 2021

It has been a good start to the year with several new CLL treatments being appro...
HAIRBEAR_UKAdministrator

Living Well With CML - Webinar 4.30pm Wednesday 21st April.

Please join us for this free webinar , there are places available registration r...
HAIRBEAR_UKAdministrator

New vaccine advice for adults living with adults who are immunosuppressed

Some breaking news today https://www.gov.uk/government/news/new-vaccine-advice-...

NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England

HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalab...

Webinar for blood cancer patients - 3.30pm 30th March - Next steps with shielding and vaccination for COVID-19

Please join us for this webinar discussion and Q&A with leading UK immunologists...
HAIRBEAR_UKAdministrator

Hi

Hi my partner has been diagnosed with TPLL which is a rare form of leukaemia, he...

Week 2 Obinutuzumab

Today was week 2 & I had my second 1000 ml transfusion of Obinutuzumab. It is 1...

ET and Hydroxycarbamide side effects

Hello. I have ET and have been taking hydroxy since October 2019. Initially ...

FBC Results Question

Hi, I had a FBC done this week, in which all the cell lines appeared to within r...

Bone marrow biopsies (trigger warning)

Hi all, We're currently developing some online information for patients about bo...

Hello I’m Kiki64

I was diagnosed with ET in 2019. Two weeks ago the haematologist told me that I ...

Webinar 3.30pm 19th March - Living well on active monitoring

Please join us for our next joint webinar with Lymphoma Action - Living well on ...
HAIRBEAR_UKAdministrator

Webinar 3.30pm, Tuesday 6th April - Acute lymphoblastic leukaemia (ALL) treatment update

Please join us for the 3rd in the series of acute leukaemia treatment updates. T...
HAIRBEAR_UKAdministrator

Webinar 3.30pm, Thursday 11th March - Acute myeloid leukaemia (AML) treatment update

Please join us for our 2nd webinar in the acute leukaemia treatment updates seri...
HAIRBEAR_UKAdministrator

Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update

Please join us for the 1st in our series of free treatment updates in acute leu...
HAIRBEAR_UKAdministrator

New

Hello everybody and thank you for letting me join your group.

A checklist at diagnosis: What would you like to see included?

Hi all, We're currently working on a document that a patient could use at diagno...

Shielding extension: England and Wales info enclosed

England: Breaking news: Shielding date until 31st March 2021 Source: Officials w...

Peripheral neuralgia

I saw the neurologist yesterday and he told me that what I have is common (10% o...

Update for UK FLAIR CLL Study Participants who have come to the end of 6 years of Ibrutininb treatment.

Many CLL patients receive Ibrutinib as their first treatment in the UK FLAIR stu...

NEW trial now opened by Birmingham University CLL specialists in UK to measure your response as CLL patients following vaccination

This is an important study to collect much needed information, please help if yo...
HAIRBEAR_UKAdministrator

Webinar - Living well with CLL - 3.30pm Monday 15th Feb

Hello friends Lymphoma Action and Leukaemia Care are back with our next joint we...
HAIRBEAR_UKAdministrator

Cookalong with LuBan Kitchen for Chinese New Year and support Leukaemia Care

We'd like to share with you an exciting online event which is happening on Thurs...
HAIRBEAR_UKAdministrator

Webinar - 3.30pm 4th Feb - COVID-19 ‘shielding’ update, coping and support.

This webinar will explore the effect of shielding long term and managing the imp...
HAIRBEAR_UKAdministrator

Large Granular Lymphocitic Leukemia.

Hi, Last year I was diagnosed with T cell- Large granular Lymphositic Leukemia....

CML Webinar - Treatment Free Remission (TFR) in chronic myeloid leukaemia

Please join us at 3:30pm on January the 27th You can register in advance her...
HAIRBEAR_UKAdministrator
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