#WatchWaitWorry - our latest campaign
NicoleLeukaemiaCare2 days ago
This week our campaigns team have launched our #WatchWaitWorry campaign at the British Society of Haematology which is being in Liver...
2 Replies3 Likes
sezzie277 days ago
It's Friday night and at 27 I would normally be out with my friends but instead I am enjoying it at home after being in isolation for 5 week...
12 Replies1 Like
CLLSA/Leukaemia Care UK buddy scheme now live - Do you want to connect with someone who has experience living with CLL?
HAIRBEAR7 days ago
If you live in the UK and have been diagnosed with CLL or are a carer (family member) you can now get support by talking with a CLL buddy. T...
1 Reply3 Likes
How do you know that you are in remission?
StarryRoo9 days ago
Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent s...
2 Replies2 Likes
Ten days to watch, wait, worry? Campaign launch
HAIRBEAR14 days ago
A week on Monday, Please join our Watch Wait Worry campaign and help us to improve the support offered to patients on Watch and Wait.
3 Replies5 Likes
Persistent infections and always unwell
Hopeful12314 days ago
I have been struggling with persistent infections for 3 months and am due for my hospital monitoring visit in three weeks. It has been ov...
14 Replies1 Like
CLL patient & carer Information booklet; download using a QR code.
HAIRBEAR22 days ago
Have a little fun and try this novel way to access CLL information, pass it on.
To help others get access to this inform...
1 Reply2 Likes
'You Matter - Your Blood Cancer and Coping With Fatigue', in Oxford on 16th June 2018.
LCNurse224 days ago
Come along to our patient information day, 'You Matter - Your Blood Cancer and Coping With Fatigue', in Oxford on 16th June 2018.
On the day,...
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Spring edition of 'Leukaemia Matters', the quarterly Leukaemia Care magazine.
HAIRBEARa month ago
From the Charity's Chair:
Welcome to the first issue of our magazine this 2018! We hope you’ve
all had a wonderful start to the new ye...
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Leukaemia and Memory.
DrunkJama month ago
Hi, me again, DH has had his regular CLL monitoring recently, and met his Clinical Nurse Specialist. He has also been referred to the memory...
8 Replies2 Likes
Tell us the 10 questions that you would like answered by research - UK National Cancer Research Institution.
Who can answer this questionnaire: Adults diagnosed with a blood cancer, those caring for an adult diagnosed with a blood cancer and health ...
Melza27a month ago
Hello my mum has become unable to do any basics like eat walk pick things up no coordination or balance it's like she's gone back to baby st...
Sammi-rose174132 months ago
I have had a blood test come back with extremely high T cells. I have had other tests for auto immune diseases and inflammation and they hav...
MDS-RAEB-2/AML, Septicshock, multi organ failure, induced coma
zJan2 months ago
My Mom is 62 years old. 5 months ago she was diagnosed with Myelodysplastic syndrome RAEB-2, developed to AML. She had multiple rounds of c...
HCL and feeling unwell
emmieb2 months ago
Hi - I had chemo for HCL just over 5 years ago but this winter have been feeling run down again. I'm menopausal too which doesn't help with ...
11 Replies1 Like
vickilou2 months ago
Last year I was suffering very badly with fatigue, recurrent urine and kidney infections, plus sinus issues. Anyway I was not sure whether i...
CLL with secondary Lymphma
benpanesar19562 months ago
I am a CLL sufferer with remission after chemotherapy . Now with diagnosed with a secondary Lymphoma Lymphoplasacytoid and on watch and wait...
Patient information day, 'You Matter - Your Blood Cancer and Coping With Fatigue', in Oxford on 16th June 2018, or Sheffield later in year
HAIRBEAR2 months ago
On the day, you'll hear talks from our fatigue expert, Dr Anne Johnson on the realities of fatigue and how to manage it, as well as meet oth...
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Leukaemia Care publications including Information booklets for patient's and family
Click here leukaemiacare.org.uk/resour... information booklets for each different blood cancer.
Click here leukaemiacare.org.uk/resources a...
Booklet update: Stem Cell transplants + AML treatments
NicoleLeukaemiaCare3 months ago
Hope you're well - a bit chilly here so keep warm!
Just a quick update on new booklets available from Leukaemia Care
Allogeneic Stem Ce...
Melza273 months ago
Just wondering if anyone is experiencing acute lymphoblastic leukemia as my mum was diagnosed last February and went out of remission 14 day...
Jillychoo3 months ago
I have CLL and am on watch and wait. I have been getting headaches at the back of my head and to one side. I’m wondering if this is a sympto...
We need you!
HAIRBEAR3 months ago
Many of you have completed the Leukaemia Care patient experience survey over the past two years, Analysis of your replies clearly shows that...
Pezza1233 months ago
Hi I was diagnosed with CLL 2 years ago and am on watch and wait. I have also suffered with chronic fatigue syndrome (ME) for a number of ye...
3 Replies2 Likes
New booklet available: A-Z of Leukaemia
Ever been baffled by some of the Leukaemia terminology?
Our latest booklet seeks to help people understand some of the terms that might be us...
Could you become a CLL buddy?
NicoleLeukaemiaCare4 months ago
In 2018, we’re launching a new, 12-month pilot scheme based in the East Midlands providing buddy support to newly-diagnosed chronic lymphocy...
Mouth care - What would you like to see in a video?
We're currently working on developing a video about mouth care and blood cancer. Is there something you would have loved to know abou...
4 Replies1 Like
PhilReade4 months ago
Hi I have essential thrombocytopenia I’ve had DVT s splenectomy a TIA I gave blood before working with organic solvents in the Aircraft indu...
Just popping in to tell you that a further two booklets have become available on our website:
CLL - this is a review booklet, which...
2 Replies5 Likes
Today Leukaemia Care and the challenges of leukaemia patients are revealed under door 19 of the HealthUnlocked advent calander.
HAIRBEAR4 months ago
Under door 19 of HealthUnlocked's #healthyholidays advent calendar, you'll find us, and we are challenging the common misbelief that leuk...
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