59 year old female
Lovinglife116 days ago
Diagnosed with ALL in 2011, really had a tough time for a few years but now enjoying life and loving my family. My health is generally good ...
4 Replies3 Likes
Recall on frozen veg
NicoleLeukaemiaCare10 days ago
Just thought i'd flag this - for anybody who is immune compromised, it is probably worth checking out t...
4 Replies2 Likes
emmieb-UK11 days ago
Hi - I've just been to see the GP about HRT (I'm 50 and having a troublesome time with perimenopause). She checked her medicine book and the...
New toolkit available: Genomic testing in CLL. What would you like to see next?
NicoleLeukaemiaCare13 days ago
We launched our latest toolkit on Friday on genomic testing in CLL.
Our know your rights toolkits cover...
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Advocacy caseworker now available
NicoleLeukaemiaCare21 days ago
Good morning from a very sunny Worcester.
A little update from Leukaemia Care - we now have an advocacy case worker within the office.
2 Replies5 Likes
CLL: FLAIR Trial site list and update to design
AdrianUKa month ago
In response to an email, I received the following reply from the organisers of FLAIR with permission to share this in the online patient for...
Hevs333a month agoPOPULAR
Hi my name is Heather and I have just joined the group I have cll was diagnosed in 2007 and still on watch and wait. Would be nice to catch...
27 Replies1 Like
Breakthrough therapy saves Mike's life - reports of innovative precision medicines for cancers from ASCO in Daily Mail
HAIRBEAR_UKa month ago
One man to have already benefited from the advances in precision medicine is leukaemia sufferer Mike Brandon.
The 34-year-old from Bristol wa...
1 Reply3 Likes
Acute Lymphoblastic Leukaemia – a wife’s perspective
For Carers Week, Lisa Goodall shares her experience of caring for her husband following his diagnosis of ALL. In this first blog, she recoun...
NEWS - Scottish Medicines Consortium (SMC) recommend the use of midostaurin for adult acute leukaemia
Scotland receives a positive recommendation by the SMC for the use of FLT3-mutation-positive targeted therapy midostaurin in first-line AML ...
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NEWS - Scottish Medicines Consortium (SMC) recommended the use of inotuzumab ozogamicin
The Scottish Medicines Consortium (SMC) issues restricted recommendation for use of inotuzumab ozogamicin in the treatment of adults with re...
Kleightona month ago
This I my first post. I was diagnosed with Myeloma in September 2008. Since then I have two stem cell transplants and for the third re-o...
4 Replies4 Likes
Cardiff Innovation and Impact Awards 2018, Cancer prognostic testing innovation is nominated as finalist, your vote counts.
The diagnostic telomere testing tool developed by Profs: Fegan, Baird and Pepper at Cardiff University has been selected as a finalist in th...
Our new Living well series
NicoleLeukaemiaCarea month ago
This week we officially launched our latest booklet, Living well with AML. It can be downloaded on the Leukaemia Care website and you...
5 Replies2 Likes
Meic132 months ago
what was your initial reaction to the word CHRONIC in the diagnosis?
mikec112 months ago
Is this the right group for someone with Chronic Lymphocytic Leukemia?
7 Replies1 Like
DrunkJam_UK2 months ago
Booking is currently open for the course in Chester. They are on Twitter too.
They run courses all over the co...
Sunday. Homework Day
One of Miss M's homework tasks this week was to make a wedding cake.
(no, seriously, it was.)
So, she and I made this one tier version of our ...
3 Replies1 Like
Hump Day Highlights
So here we are at hump-day. Which means, it's down hill to then weekend from here!
How's it going this week everyone?
My knee is not getting...
7 Replies2 Likes
Lazy Sunday Afternoon
We are just having 5 minutes in the garden waiting for DS to get back from Scout Camp. Having mowed the lawn, and planned the dinner, I thou...
Feel good Friday!
NicoleLeukaemiaCare2 months ago
So, it's Friday! Hooray, we made it.
This is what I'm looking forward to this weekend!
3 Replies5 Likes
Benpanesar2 months ago
Does anyone know of Travel Insurance providers for CLL condition?
HU Workshop Newly diagnosed
Irishcll2 months ago
Newly diagnosed with CLL and need some information on what to expect. When will I need treatment. Really worried.
How will I tell my children...
3 Replies3 Likes
HU workshop - worried waiting
worriedgirl20172 months ago
Hi all. Last week I was told I have something called CLL although after trawling online I'm worried it might be called SLL?
I've been told I ...
My own Watch Wait and Worry CLL story
AdrianUK3 months ago
Thanks so much to Leukaemia Care for the fantastic watch and wait campaign, highlighting how difficult it is for us to adjust to.
We are tol...
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#WatchWaitWorry - our latest campaign
NicoleLeukaemiaCare3 months ago
This week our campaigns team have launched our #WatchWaitWorry campaign at the British Society of Haematology which is being in Liver...
2 Replies3 Likes
sezzie273 months ago
It's Friday night and at 27 I would normally be out with my friends but instead I am enjoying it at home after being in isolation for 5 week...
12 Replies1 Like
CLLSA/Leukaemia Care UK buddy scheme now live - Do you want to connect with someone who has experience living with CLL?
HAIRBEAR_UK3 months ago
If you live in the UK and have been diagnosed with CLL or are a carer (family member) you can now get support by talking with a CLL buddy. T...
How do you know that you are in remission?
StarryRoo3 months ago
Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent s...
Ten days to watch, wait, worry? Campaign launch
A week on Monday, Please join our Watch Wait Worry campaign and help us to improve the support offered to patients on Watch and Wait.
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