Posts - Leukaemia CARE | HealthUnlocked

Leukaemia CARE
755 members363 posts

Sort posts by:

Bone/muscle pain

Anyone experiencing this 3 years in remission female diagnosed 2013 ALL seems to...

Painful toes

Hi, I have recently been diagnosed with cml, not seen a specialist yet though it...

World Mental Health Day 2019

Happy thursday all, Today is World Mental Health Day. A blood cancer diagnosis c...

Latest LC patient advocacy newsletter

Emails are on their way to subscribers - have you subscribed? You can read the l...

Can solid tumors arise from acml?

Hi, I have acml with W/b count in 60,000 range but occasionally goes down. My qu...

New diagnosis of ALL for my son 25 ..so scared

Scared mother of a 25 year old son recently diagnosed with ALL totally out of th...

2019 flu jab info (UK specific)

Hi all, This is specific for UK based people. I was in my GP waiting room (acco...

New to ALL - UK

Hi there I’m new to this site. My husband was diagnosed with ALL about 7 weeks a...

Time for a change!

After 20 years with myeloma and being well controlled with Lenalidamide for the ...

Rash that does not it h

Hi been dealing with a rash all over my body, Went to the dermatologist they gav...

Minor set back with last blood tests.

Hi Saw my haematologist on Wednesday about my blood results. I have blood tests ...

Results cml myeloproliferative

Hi anyone give any advice Had results of jak2 test as unequivocal, doctor seeme...

Water.

When I was first diagnosed with AML 19 months ago, my haematologist said I shoul...

Consultation on ill health in the workplace - what's important to you

Hi everyone, Today I came across a consultation that the Department of Health an...

War in the blood - BBC iPlayer

Hi all, Just wondering whether any of you had managed to catch the BBC documenta...

Worried

Hi there, I don’t mean to write this post to be insensitive to those who suffer...

CLL - WATCH & WAIT

Hi All I’m a newbie, just recently diagnosed with CLL. After being diagnosed, I...

Questions about bone marrow biopsy (having my second one Tuesday 😰) and MDS

Hi, I am getting my second bone marrow biopsy in less than a year on Tuesday 😥 ...

Thank you

I was diagnosed with cll in 2012! Began Imbruvica five weeks ago with little si...

Out of my depth

Not sure if the right forum or group , short story had raised wbc now of around ...

Patient to help us with a drug appraisal for NICE - can you help?

Hi everyone! Leukaemia Care are currently working with NICE as they decide wheth...

The Summer edition of Leukaemia Matters is now on its way to doorsteps and inboxes!

Welcome to the Summer issue of our magazine! Read more about the activities of...

Elective hip replacement for osteoarthritis in severe CLL - any advice?

I'm new here. Does anyone have experience of hip replacement surgery for osteoar...

Dads rash

Dads got AML. He declined treatment back in August last year. Still going strong...

Bmb

Hi guys....if any of you have had a BMB how long do you wait for results? I'm se...

CLL patient input: New booklet - Richter's Syndrome/Transformation

Hi all, We're currently scoping out a project in which we will write patient inf...

Lymphoblastic lukaemia

My mum died after a 2 hr battle with lymphoblastic leukaemia yesterday she grew ...

Have you been diagnosed with acute leukaemia? Share your experience in a global quality of life survey and help drive improvements in Care.

ALAN - The Acute Leukaemia Advocates Network is an international group of patien...

New Leukaemia Care pens available to order

Hi all, A patient spotted one of our new quirky pens last week and we've been ov...

Cheap Ibrutinib for B Cell Prolymphocitic Leukemia Patient in Pakistan

My father was diagnosed with B Cell Prolymphocitic Leukemia in March 2017. He re...
Write a post or ask a question