Dana-Farber failed me
I went to them for advice, when my prostate cancer was contained in my prostate. This was five years ago, I was ignorant, the Urologist wante...
One week out of hospital.....
A big THANK YOU to all those of you who offered me so much brilliant advice on how to adjust to living with a stoma . That has proven to be t...
Maybe we should all get a cholera vaccine.
" Table 1. After a mean age of 7.2 years and accumulated 6033 person-years of follow-up, 29 of them had died due to prostate cancer, giving a...
GFR improvements possible?
I’m working toward increasing my GFR or at least stabilizing it in the long term....
Nocturia - for those who have it. Since my surgery 15 years ago, I regularly visit the bathroom twice each night to void the bladder....
Catch up time ....again ....
Am I overcome's worst correspondent ? I hope not but I do know I slip out of the loop ....
After every single blood test My doctor asked for more Three within a fortnight I was keeping score Finally I got a text Doc would like to se...
A frustrating case of parathyroidism
Has anyone been diagnosed with primary hyperparathyroidism but nothing shows up on a scan? I feel pretty fatigued most of the time and would ...
Has anyone seen my big girl's knickers?
Hi all. As promised, my results....
"no way to know if it's working"....Wow. Provenge
well... what an interesting day....
Nalakrats Goes Hunting Gators for Gusgold
3 lines with 100 lb test, and 10 Gauge Piano Wire, leaders, no gator can chew thru, with hunks of meat on. Gator gun hidden, in picture....
Anniversary QEH Hospital Visit
Just a quick message to express relief after my first anniversary visit, all is still going really well and my anti immune drugs have been st...
Had my monthly review with GP last week and was told my white blood cell count was low, she said this can happen with long term steroid use. ...
The ET hasn't helped me one bit and two weeks ago, despite starting on hydroxy, the platelets were at a million....
The kidney connection continued
Hi everybody. Thanks for all those kind people who replied to my recent posts....
So, second trip to see new GP confirmed Kidney/Urine Infection & l was on correct Antibiotics, she has now ordered a Scan of my kidney in cas...
Enzymes to dissolve the alpha-synuclein protein build up in the brain.
I have just read about this alpha-synuclein protein as being a contributor to PD and am wondering if anyone knows or has come across any rese...
Inositol hexaphosphate plus inositol
New paper below. I don't like anecdotal info, even from the Mayo Clinic, & particularly for a different cancer, but I know that Dr Shamsuddin...
Statins and AKI
Hi guys, Anyone had any experience in this; About 12 months ago when my GFR was > 90 and my bold pressure was 130/80, because of high cholest...
Just came here for a second opinion for my husband with Dr. Eric Kim Urologist. My husband was in so much pain he couldn’t walk or sit....
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