Posts - Kidney Cancer Support | HealthUnlocked

Kidney Cancer Support

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Radical or partial nephrectomy with existing chronic kidney disease

Hi I’m looking for any advice, info or reflections to help with my decision making. I am 63 and have stage 3a CKD. After a rapid drop in eGfr a couple of...

Hi I’m looking for any advice, info or reflections to help with my decision maki...

•1 year ago

New to this

Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she...

Hi, Sorry If this reply to this post is too long First I would just like to say...

•3 years ago

Votrient

Wife is on cycle (month) #99 of Votrient!

Wife is on cycle (month) #99 of Votrient!

•4 years ago

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Welcome

To All the New People

To All the New People

•5 years ago

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New drug consultation

Hi everyone! I would like to know if someone from the community experimented with cabozantinib, they told me that it is a practically new drug. If so, what...

Hi everyone! I would like to know if someone from the community experimented wit...

•5 years ago

Lifestyle whilst on chemo

Hi there I’ve recently been diagnosed with kidney cancer. I’ve had surgery and have started chemotherapy in an attempt to shrink/eliminate lung mets - i just...

Hi there I’ve recently been diagnosed with kidney cancer. I’ve had surgery and h...

•5 years ago

Submit questions for a video resource library

Greetings! I’m seeking your suggestions for common questions about kidney cancer that you should ask your oncologist, surgeon, nurse, or other healthcare...

Greetings! I’m seeking your suggestions for common questions about kidney canc...

Partner•5 years ago

Hope everyone is doing well.

My wife is now on cycle (month) #80 of Votrient...

My wife is now on cycle (month) #80 of Votrient...

•5 years ago

Will Kidney function improve after gemzar/cisplatin

I hovered at creatinine of 1.1 to 1.3 during treatment but 4 weeks after treatment it is now 1.7 with egfr of 30. I am actually not very happy with my...

I hovered at creatinine of 1.1 to 1.3 during treatment but 4 weeks after treatm...

•5 years ago

Still worried :(

I had my left kidney removed in July 2016 I have Stage 3 kidney cancer. I know I should be happy about 3 years , but I am worried still it will be back. I...

I had my left kidney removed in July 2016 I have Stage 3 kidney cancer. I know I...

•5 years ago

Welcome to all the new people

Please ask questions

Please ask questions

•5 years ago

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FB Live - 6/10, 1:00ET: “You’re Told You Have Kidney Cancer. Now What?”

Hi folks, I thought you might be interested in this program: The Kidney Cancer Action Network (KCAN) and the National Kidney Foundation (NKF) are collaborating...

Hi folks, I thought you might be interested in this program: The Kidney Cancer A...

•5 years ago

New here

Hello, I’m 51, and whilst been in hospital following surgery for a hysterectomy, I had a CT scan which showed up something on my right kidney. I saw the...

Hello, I’m 51, and whilst been in hospital following surgery for a hysterectomy,...

•5 years ago

GENETIC TESTING

Other than myself, has anyone had genetic testing done to see if you carry the gene for kidney cancer? My oncologist is also a geneticist and had me tested...

Other than myself, has anyone had genetic testing done to see if you carry the g...

•5 years ago

Treatments after Immunotherapy

Hello! After the operations my doctors gave me Sutent for 7 months. Then there was resistance and I had surgery on the psoas muscle, which is the most affected...

Hello! After the operations my doctors gave me Sutent for 7 months. Then there w...

•6 years ago

Hello

Hello everyone. Hope everyone is doing ok?

Hello everyone. Hope everyone is doing ok?

•6 years ago

Controlling stress

I'm new and it's clear by everything I've read that controlling stress when you receive a cancer diagnosis is very important. I have stomach pains and...

I'm new and it's clear by everything I've read that controlling stress when you ...

•6 years ago

Positive margins

At 38 I was diagnosed with stage 1 Grade 2 clear cell renal cell carcinoma. I had a partial nephrectomy but my margins returned as positive. I have been...

At 38 I was diagnosed with stage 1 Grade 2 clear cell renal cell carcinoma. I ha...

•6 years ago

To All New People “Welcome”

If you are new please ask questions or contribute to postings. Please always remember to do your own research. There is a lot of misleading information out...

If you are new please ask questions or contribute to postings. Please always rem...

•6 years ago

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Grade 1

After partial nephrectomy pathology result is renal cells carcinoma, grade 1, t1A, free margins. What kind of follow up I need and for how many years ? This...

After partial nephrectomy pathology result is renal cells carcinoma, grade 1, t1...

•6 years ago

Another question about grade of cancer

The thing I don't understand is if they cut the tumor out with clear margins and it's stage 1,no lymph node involvement... Why is the grade then important?...

The thing I don't understand is if they cut the tumor out with clear margins and...

•6 years ago

Stage or grade??? Which is the stronger factor for predicting reoccurance or metastasis?

Just wondering what you all think... If you had to choose would you prefer stage 1 grade 3, or stage 3 grade 1? Its a silly question probably... But I'm just...

Just wondering what you all think... If you had to choose would you prefer stage...

•6 years ago

New to group, wanted to share experience

Hello all. New to the group, but wanted to share a bit of my experience. I'm 32 and was diagnosed with Stage IV RCC with metastases to bilateral lungs in...

Hello all. New to the group, but wanted to share a bit of my experience. I'm 32 ...

•6 years ago

DOES EVERYONE NEED AN ONCOLOGIST?

So I have a question. Does everybody need an oncologist? Or is your surgeon / urologist enough? My stage 1 cancer RCC was surgically removed in July of 2018...

So I have a question. Does everybody need an oncologist? Or is your surgeon / ur...

•6 years ago

New to this group and have some questions

I was diagnosed with stage 1 RCC in April 2018. It was an incidental finding. I had a 2.7cm tumor on my left kidney which was removed in July 2018. Pathology...

I was diagnosed with stage 1 RCC in April 2018. It was an incidental finding. I ...

•6 years ago

New Here: Question Regarding Kidney Cancer Followup Care

I'm a 44-year old male and I was diagnosed with renal cell carcinoma (kidney cancer) at the beginning of last November then had the kidney removed (radical...

I'm a 44-year old male and I was diagnosed with renal cell carcinoma (kidney can...

•6 years ago

Support Of Family and or Friends

Have your family or friends. Treated you differently since diagnose?

Have your family or friends. Treated you differently since diagnose?

•6 years ago

Side Effects on TKIs Drugs

Which side effects do you have?

Which side effects do you have?

•6 years ago

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CT Scans

Are you getting your CT Scans with or without contrast?

Are you getting your CT Scans with or without contrast?

•6 years ago

Port

How many people had a port in place?

How many people had a port in place?

•6 years ago

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